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For creating or repairing Kock pouches, I can very, very highly recommend this surgeon in New York, who was trained by the late and revered Dr Victor Fazio:

Dr. Pokala Ravi Kiran, MD
Chief and Program Director, Division of Colorectal Surgery
New York-Presbyterian/Columbia University Hospital
(212) 342-1155‬

My Kock pouch was created by Dr Fazio in 2002. I did not have even a single problem until I had valve slippage in 2018. Dr Kiran repaired it so flawlessly that I was eating full meals again almost immediately. I was very, very lucky to find him. He creates and repairs a substantial number of K-pouches every year so his skills with this very demanding procedure remain sharp. Dr Kiran and his staff are fantastic all around, and certainly well worth the cost of the travel from anywhere.

J-pouch surgery is an option for some but not all patients. The surgeon who removed my colon cut too much tissue so a J-pouch was not an option. I am very, very happy with my K-pouch, though, and again highly recommend

Dr Kiran at New York-Presbyterian/Columbia University Hospital
(212) 342-1155

There are maybe five surgeons in the world who are highly trained and skilled enough to create continent ostomies like K-pouches and BCIRs. WARNING: there are a LOT of unscrupulous surgeons who CLAIM that they know how to do it, or that they can do repairs, and instead damage the continent ostomy or even REMOVE it. PLEASE be careful when choosing a surgeon. Check these boards for RECENT recommendations from patients who have actually been treated by a surgeon and endorse his/her surgical skills and post-surgical care.

@sldrx posted:

J-pouch surgery is an option for some but not all patients. The surgeon who removed my colon cut too much tissue so a J-pouch was not an option. I am very, very happy with my K-pouch, though, and again highly recommend

Dr Kiran at New York-Presbyterian/Columbia University Hospital
(212) 342-1155

There are maybe five surgeons in the world who are highly trained and skilled enough to create continent ostomies like K-pouches and BCIRs. WARNING: there are a LOT of unscrupulous surgeons who CLAIM that they know how to do it, or that they can do repairs, and instead damage the continent ostomy or even REMOVE it. PLEASE be careful when choosing a surgeon. Check these boards for RECENT recommendations from patients who have actually been treated by a surgeon and endorse his/her surgical skills and post-surgical care.

Thank-you

Were you mad originally at the surgeon that cut too much tissue off???

The surgeon who cut off too much tissue knew I had a prime malpractice lawsuit on my hands... so (without mentioning 'lawsuit') he offered to send me to his surgical mentor — who happened to be the head of colorectal surgery at the Cleveland Clinic and the top K-pouch surgeon in the world, Victor Fazio. I would never have found out about K-pouches if this idiot surgeon hadn't been trying to save himself from a lawsuit! And I could not have gotten luckier -- the late Dr Fazio is a legend who other colorectal surgeons talk about with reverence and awe. So a disaster turned into a miracle. Yes, I was angry but I was also choosing my battles carefully. I'd been so sick --down to 75 pounds at one point  -- and I had to focus on the future. The surgeon I keep recommending (Dr Kiran) was trained by Dr Fazio himself.

Dr Kiran at New York-Presbyterian/Columbia University Hospital
(212) 342-1155

@sldrx posted:

The surgeon who cut off too much tissue knew I had a prime malpractice lawsuit on my hands... so (without mentioning 'lawsuit') he offered to send me to his surgical mentor — who happened to be the head of colorectal surgery at the Cleveland Clinic and the top K-pouch surgeon in the world, Victor Fazio. I would never have found out about K-pouches if this idiot surgeon hadn't been trying to save himself from a lawsuit! And I could not have gotten luckier -- the late Dr Fazio is a legend who other colorectal surgeons talk about with reverence and awe. So a disaster turned into a miracle. Yes, I was angry but I was also choosing my battles carefully. I'd been so sick --down to 75 pounds at one point  -- and I had to focus on the future. The surgeon I keep recommending (Dr Kiran) was trained by Dr Fazio himself.

Dr Kiran at New York-Presbyterian/Columbia University Hospital
(212) 342-1155

LOL, you are funny! I love it! I also love your optimism! You must be a really happy person! We all can learn a lot from you. You must be stress-free too.

I hear K-pouches are a great alternative to a ileostomy. Its probably hard to find a gastro that is experienced with scoping it for check-ups.

How often do you have to empty out your K-pouch??? Every 3-4 hours right?

And how often do you have to change catheters???

It must be hard to clean the catheters and taking it with you wherever you go too. You guys probably keep the catheter in a bag to take it with you when you go out.

Last edited by Lauren Of Emerald City

YES, I HIGHLY HIGHLY recommend the K-pouch! There was a whole year between the removal of my colon and my K-pouch surgery when I wore an ostomy bag so I know what that entails. Frankly, I hated wearing the bags and emptying them and all that went with it. The K-pouch has been one of the greatest miracles of my life and I post here and recommend my surgeon so that people know they have options that most surgeons won't even mention because they don't do the surgery themselves.

How often I empty the pouch depends entirely on what and when I eat and drink, and if I'm having a busy day and don't want to have to empty her frequently, I can adjust what I put into her -- less gassy foods, less bulky salads.

Catheters will be covered by your medical insurance and you just rinse them out in the sink when you're done intubating. They're made of flexible silicone, and they stay pretty clean for weeks but you can change them as often as you want. I keep one in a baggie in my handbag with a packet of lubricant so I can empty her 'on the road.'

I have annual checkups with Dr Kiran in NYC, where I live. (Dr Kiran at New York-Presbyterian/Columbia University Hospital (212) 342-1155) I had no problems for years and years so I don't know that you really need to have an annual checkup -- but knowing what I know  with 18 years of experience I would definitely get this surgery again even if I lived a few hours away from the doctor I needed to see if I had any problems. I traveled to Cleveland twice to get this surgery and still think it was one of the BEST decisions I ever made.

@sldrx posted:

YES, I HIGHLY HIGHLY recommend the K-pouch! There was a whole year between the removal of my colon and my K-pouch surgery when I wore an ostomy bag so I know what that entails. Frankly, I hated wearing the bags and emptying them and all that went with it. The K-pouch has been one of the greatest miracles of my life and I post here and recommend my surgeon so that people know they have options that most surgeons won't even mention because they don't do the surgery themselves.

How often I empty the pouch depends entirely on what and when I eat and drink, and if I'm having a busy day and don't want to have to empty her frequently, I can adjust what I put into her -- less gassy foods, less bulky salads.

Catheters will be covered by your medical insurance and you just rinse them out in the sink when you're done intubating. They're made of flexible silicone, and they stay pretty clean for weeks but you can change them as often as you want. I keep one in a baggie in my handbag with a packet of lubricant so I can empty her 'on the road.'

I have annual checkups with Dr Kiran in NYC, where I live. (Dr Kiran at New York-Presbyterian/Columbia University Hospital (212) 342-1155) I had no problems for years and years so I don't know that you really need to have an annual checkup -- but knowing what I know  with 18 years of experience I would definitely get this surgery again even if I lived a few hours away from the doctor I needed to see if I had any problems. I traveled to Cleveland twice to get this surgery and still think it was one of the BEST decisions I ever made.

WOW thank-you for all of that insight!

I believe its recommended for us "POUCH" people to get scoped every 1-3 years.

I love how you call your K-pouch "HER", I do that too with my J-pouch. Have you named your K-pouch???

@sldrx posted:

She's called The Princess, Miss Pouch. She's 'the princess' because she can have ANYTHING SHE WANTS. Miss Pouch is a miracle and very, very precious. I consider myself incredibly lucky and I do my best to take very, very good care of her.

LOVE LOVE THIS!!!! Cool name!!!! The Princess Miss Pouch is a perfect name

I named my J-pouch, "The Emerald City Of OZ". I am a huge WIzard of OZ fan, I read all 15 books. Emerald City is a magical city and so is my pouch. I call her EMMIE for short

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