Please add  KP-surgeons
Tom Øresland, Ahus, Lørenskog, Norway
Arne Færden,  Ahus , Lørenskog, Norway 
Postbox 1000
N-1478 Lorenskog
Norway.

Phone 0047 915 02900

Dr Gregg Shore not there and not doing k pouches any longer.

Dr David Beck in New Orleans is great.

Dr. Dietz is leaving the Cleveland Clinic as of August 6, 2016. 

For those of you in California, do you go to UCLA or Cedars-Sinai? What doctors do you use for GI and Surgeon?

Anybody know where Dietz is going to? Original surgeon was Fazio who isn't practicing anymore. Saw Dietz for a checkup and now not sure who to see for maintenance.

He's going to University Hospitals- about 5 blocks from Clinic.  He is my surgeon & I think I will follow him. He starts 8/28.

michael s posted:

I believe Dr. guy Orango has left Atlanta Ga. not sure where he went

Many months later but you are correct. Dr. Orango is at LSU now.

http://www.livingneworleans.com/?p=8342

Dr. Heitland in Munich, Germany. Right now he's at the Isarklinikum. (K-Pouch)

I heard that Dr. Ecker (Germany) has retired.

I just saw Prof. Dr. A. J. Kroesen, Krankenhaus Porz am Rhein, Urbacher Weg 19, 51149 Köln- Porz

I was favourably impressed and am happy to have a competent K-pouch surgeon close at hand!

Hi Lucky,

No, Dr. Ecker has not yet retired. I am in contact with him and will be meeting him next month.

Feza Remzi, MD

• Specialties: Colorectal Surgery, General Surgery
• Language: English
• Phone: 646-501-8670
• Dr. Remzi comes from the Cleveland Clinic
• and now practices at NYU.

I'm pretty sure Professor Neil Mortensen (Oxford, UK) has now retired. He did my original surgeries; I heard this from other members of the clinic that runs there

woodstock69 posted:

I called everyone on this list today August 19, 2013 and in bold I have made notes

Dr.Gregg Shore- (NO LONGER AT THIS PRACTICE)DR SHORE NO LONGER DOING KOCK POUCHES AND ALL THIS INFORMATION SHOULD BE DELETED
1201 5th Ave.N.,St. Petersburg , FL 33705
888-825- 1495
http://www.intestinalcontinence.com

Matthew Vrees, MDDR VREES DOES NOT DO KOCK POUCH SURGERY NOR DOES HE MANAGE THEM PER HIS OFFICE
Rhode Island Colorectal Clinic, 334 East Ave, Pawtucket, RI
401-725-4888
http://www.ricolorectalclinic.com/physicians.htm

Dr.Jeffrey Milsom
1315 York Ave.,NY,NY 212 746 6030
212-746-5597 this is number for NY presbyterian hospital and should be deleted
http://www.cornellphysicians.com/jwmilsom/

Dr.Joel Bauer, Dr.Stephen Gorfine and Dr. David Bub
25 E. 69th St. NY,NY 10021
212-517-8600
http://www.colonsurgeryinfo.com/

Dr. LaunerHe is deceased
Dr Michael Jonathan Worsey (trained by Dr. Launer)
jworsey@advancedsurgical-sd.com
Dr.Gail Salganic (trained by Dr. Launer)
gsalganick@advancedsurgical-sd.com
Scripps Hospital
Advanced Surgical Associates of San Diego
9850 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272
http://www.advancedsurgical-sd...;task=view&id=23
http://www.advancedsurgical-sd...;task=view&id=25

Dr. Donald Schiller BCIR
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. Fazio, Dr. Feza Remzi, Dr. David Dietz and Dr. KiranDr Fazio is no longer available and his name should be removed
Cleveland Clinic, 9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org
http://my.clevelandclinic.org/...ry/3/Staff_2393.aspx
http://my.clevelandclinic.org/...ry/5/Staff_4088.aspx

Dr. Robert Wexner is a surgeon at the Cleveland Clinic in Weston, Fl. He mentioned to a member he does a few KP's per year. A possible option. Dr Wexner does not perform kock pouch surgery, he did one several years ago in conjunction with a BCIR Dr for a special case

Dr. Alex Ky-Miyasaka-Dr Ky never did kock pouch surgery nor does she manage them
Mt. Sinai, 5 E. 98th St #11,NY,NY 10029
212-241-3547
http://www.mountsinai.org/Find...amp;officeDrawer=pat



Hide Post


Dr. Robert Beart
Colon Rectal Surgery Institute
222 W Eulalia St Ste 100A
Glendale, CA 91204
(818) 244-8161
http://www.glendalememorialhos...ery_Institute/202006

Dr.David Sung
1260 15th St.,Santa Monica, CA
310-395-6123

Dr. Ernest Rehnke BCIR
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr Paul Williamson This practice does not do kock pouch surgery or manage them delete the info
110 W. Underwood St.,Orlando, FL 32806
407-422-3790
http://www.crcorlando.com

Dr. Rolando Rolandelli He does not perform kock pouch surgery
95 Madison Ave., Ste 304C, Morristown ,NJ 07960
973-971-4105 or 973-971-7200
http://www.dr-rolandelli.com/m...team/rolandelli.html

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730‎
http://www.baylorhealth.com/Ph...sician.aspx?pid=2146

Dr.Sandy Fogel REMOVE
213 McClanahan St SW, #404, Roanoke,VA 24014
540-342-6346 number out of service
http://www.carilionclinic.org/...ian&phyID=135028

Dr. David Beck Yes and very experienced spoke with him personally
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org

Dr. Susan Galandiuk(learned from Dr Fazio) remove this info she does not perform or manage kock pouch
University of Louisville Colon & Rectal Surgery
550 S. Jackson Street, Louisville, KY 40202
502-852-4568 502 583 8303
susan.galandiuk@louisville.edu
http://www.louisvillesurgery.c...ctors/galandiuk.html

Dr. Guy R. Orangio does not perform or manage kock pouches
Atlanta, GA
770-995-9528
http://www.gcrsa.com

Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
akaiser@usc.edu
http://www.usc.edu/schools/med....php?PersonIs_ID=540

I saw Dr Rolandelli this week and mentioned this post. It seems he still does do the k pouch surgery. I would call first and ask before striking him off your list. In fact I would call any doctor on the list first and double check to be sure. We need all the resources we can get. Have a good one. Mary

Dr. Fazio, Dr. Feza Remzi, Dr. David Dietz and Dr. KiranDr Fazio is no longer available and his name should be removed
Cleveland Clinic, 9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org
http://my.clevelandclinic.org/...ry/3/Staff_2393.aspx
http://my.clevelandclinic.org/...ry/5/Staff_4088.aspx

Dietz is at university hospital in cleveland

Remzi is in nyc--others have his coordinates

Kiran is at columbia presbyterian in nyc

dr. fazio is  deceased

JLH posted:

Dr. Fazio, Dr. Feza Remzi, Dr. David Dietz and Dr. KiranDr Fazio is no longer available and his name should be removed
Cleveland Clinic, 9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org
http://my.clevelandclinic.org/...ry/3/Staff_2393.aspx
http://my.clevelandclinic.org/...ry/5/Staff_4088.aspx

 

Dietz is at university hospital in cleveland

Remzi is in nyc--others have his coordinates

Kiran is at columbia presbyterian in nyc

dr. fazio is  deceased

So no one at Cleveland Clinic does K pouches?

Shavon- I will PM you shortly; but as I understand, the last Kpouch surgeon Dr. Ashburn is leaving or has left CC. 

Dr. Dietz is right down the street from CC at University Hospitals- he did my surgery & revisions. 

 Does anyone know of doctors familiar with FAP in Tucson, Arizona?

Met satish warrier in Melbourne Australia does the Kock Pouch. I received an email from him last week from here admin@mgie.com.au 

I had a K pouch revision on Sept 12, 2017 performed by Dr. Jean Ashburn just before she left the Cleveland Clinic to move to North Carolina. Her new contact number is  336-716-0664. 

One of her colleagues at the Cleveland Clinic, Dr. Sherief Shawki, is taking over her K pouch patients. I have been following up with him. 

I just wanted to thank you for keeping this list. It was instrumental in my decision to move to New York to see Dr. Kiran. He literally saved my life. He is honestly the most intelligent and masterful doctor I have ever encountered (and I've see hundreds). He trained under the great Dr. Fazio at Cleveland Clinic and is now chief at Columbia. I cannot recommend him enough for any IBD related surgery. In any case, thank you for playing the role you did in all this.

Dr. Joel Bauer left the group and is flying solo. His new number is 646-952-9898 and is located 1010 5th Ave, New York, NY (across the MET museum).

Also I believe Dr. Remzi specializes more in the J-Pouch, though he may have built a K-pouch or two back during his Cleveland Clinic days.

The zip code for Dr. Ernest Rehnke is incorrect.  It is 33707.

No Neil Mortensen has not retired from private practice, only public practice. I just heard from him today

guys, Sharon I need your help. The time for proctocolectomy has arrived and I don't want a Brooke ileo again I want a k pouch. Please help me with pros and cons. I'm a professional golfer and good tennis player I found that Brooke ileo just didn't allow me to play same standard as before. I feel like I should just go for it, but need a little positive kick in backside

jojo

jojo, get the books written by Rolf Bienerska (a professional football player,retired). It will educate you on many levels of the pro athletics with a kpouch

U.S. in no particular order:

Dr Kiran (from the Cleveland Clinic)
Herbert Irving Pavilion Room 8th Fl.
161 Fort Washington Avenue
New York, NY 10032
Phone: 212.342.1155
http://asp.cumc.columbia.edu/f...118&DepAffil=Surgery

Dr Michael Jonathan Worsey (trained by Dr. Launer)
Dr. Bermeister being trained by Dr Worsey
Scripps Hospital
9834 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272
http://sdcolonrectal.com/

Dr. Donald Schiller BCIR
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. David Dietz 
Cleveland Clinic,
9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org

Dr. Ernest Rehnke BCIR
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730
http://www.baylorhealth.com/Ph...sician.aspx?pid=2146

Dr. David Beck
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org

Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
email: Kaiser_a@med.usc.edu
http://www.surgery.usc.edu/col...-kaiser_andreas.html

OUTSIDE US:

Dr. Zane Cohen, Dr. Robin McLeod
Toronto, Canada
416-586-8346
http://www.mountsinai.on.ca/ca...-cohen-m-d-f-r-c-s-c
http://www.mountsinai.on.ca/ca...mcleod-m-d-f-r-c-s-c

Dr. Brian Taylor (BCIR)
339 Windermere
London, ON
519-685-8500(519) 663-3209

KP (not BCIR) surgeon: Mr Graeme Wilson
Western General Hospital
Colorectal Surgery
Edinburgh, UK0131 537 1000 (Main Hospital Number - ask for his sec)

Hans Wassmuth MD.PhD (trained by Professor Helge Myrvold and Dr Hulten)
Surgical department
St Olavs Hospital.
Universitetssykehuset i Trondheim
7006 Trondheim
At Ahus they are now having a clinical trial on making a mechanical nipple by using a titanium implant with a lid.

Dr Jonas Bengtsson
The Colorectal Unit
Sahlgrenska University Hospital SU/Ö
416 85 Göteborg Sweden
jonas.l.bengtsson@vgregion.se

Prof.Karl-Wilhelm Ecker
Müriz klinikum
Klinik für Allgemein-, Visceral-, Thorax und Gefäßchirurgie
Surgical Department
Weinberstr. 19
D-17192 Waren ( Germany)
E-Mail: karl-wilhelm.ecker(at)mueritz-klinikum.de

* Many of the US surgeons previously listed do not actually do K pouches / BCIR but do other types of pouches.

Jeannedk posted:

U.S. in no particular order:

Dr Kiran (from the Cleveland Clinic)
Herbert Irving Pavilion Room 8th Fl.
161 Fort Washington Avenue
New York, NY 10032
Phone: 212.342.1155
http://asp.cumc.columbia.edu/f...118&DepAffil=Surgery

Dr Michael Jonathan Worsey (trained by Dr. Launer)
Dr. Bermeister being trained by Dr Worsey
Scripps Hospital
9834 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272
http://sdcolonrectal.com/

Dr. Donald Schiller BCIR
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. David Dietz 
Cleveland Clinic,
9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org

Dr. Ernest Rehnke BCIR
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730
http://www.baylorhealth.com/Ph...sician.aspx?pid=2146

Dr. David Beck
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org

Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
email: Kaiser_a@med.usc.edu
http://www.surgery.usc.edu/col...-kaiser_andreas.html

OUTSIDE US:

Dr. Zane Cohen, Dr. Robin McLeod
Toronto, Canada
416-586-8346
http://www.mountsinai.on.ca/ca...-cohen-m-d-f-r-c-s-c
http://www.mountsinai.on.ca/ca...mcleod-m-d-f-r-c-s-c

Dr. Brian Taylor (BCIR)
339 Windermere
London, ON
519-685-8500(519) 663-3209

KP (not BCIR) surgeon: Mr Graeme Wilson
Western General Hospital
Colorectal Surgery
Edinburgh, UK0131 537 1000 (Main Hospital Number - ask for his sec)

Hans Wassmuth MD.PhD (trained by Professor Helge Myrvold and Dr Hulten)
Surgical department
St Olavs Hospital.
Universitetssykehuset i Trondheim
7006 Trondheim
At Ahus they are now having a clinical trial on making a mechanical nipple by using a titanium implant with a lid.

Dr Jonas Bengtsson
The Colorectal Unit
Sahlgrenska University Hospital SU/Ö
416 85 Göteborg Sweden
jonas.l.bengtsson@vgregion.se

Prof.Karl-Wilhelm Ecker
Müriz klinikum
Klinik für Allgemein-, Visceral-, Thorax und Gefäßchirurgie
Surgical Department
Weinberstr. 19
D-17192 Waren ( Germany)
E-Mail: karl-wilhelm.ecker(at)mueritz-klinikum.de

* Many of the US surgeons previously listed do not actually do K pouches / BCIR but do other types of pouches.

Dr David Dietz has not been at Cleveland Clinic for a few years now. He is at University Hospital just down the street from Cleve Clinic

2022 UPDATE of my post on Dr Kiran: I am NOT recommending him anymore — I strongly suggest that you AVOID HIM at all costs. If you want details, feel free to PM me.

Mr Neil Mortensen 

john radcliff hosp, Oxford, UK

is not retired and training a new recruit! He is now working only privately not publicly though

hope this helps

I just can’t stress enough how wonderful Dr. Kiran really is. This doctor is literally the ONLY ONE who stepped up to the plate when no other surgeon in the country was willing to take on my case. He is the reason where my health and overall well-being is at today. I’m very fortunate to not only have found such a gifted and talented doctor but also a human being who looks past beyond medical reports/diagnosis, to show true concern and comfort.

MJ0917:

How long did you have to wait for an appointment with Dr. Kiran?

Is he located in New York City? I have contemplated setting up an appointment with him, but the distance and hotel expenses in that area are considerations.

Hi Kim, not long. At most it was probably 2 weeks, mainly because he had to go out of state. He’s in Upper West side NYC closer to Harlem. Feel free to message me if you have any further questions. Be well.

Dr Phillip Smart and Dr Satish Warrior

Melbourne Australia 

0398957286 or 0394175306

Janicem   Great List   I have had a K Pouch since 1985 Performed by Dr Randall Bollinger at Duke. Unfortunately he retired. I live in Southern WV and am a retired PA. Looks like there may be a MD in Roanoke Va  Dr Fogel. Thank you so much for all this work. With no malice intended, most physicians acquire this distant stare when you mention a Kock Pouch. Fortunately I have a PCP who listens to me when it comes to the pouch

Mike

Please add Dr. Pouya Benyamini at 5901 W Olympic Blvd
Ste 504, Los Angeles, CA 90036, 310-526-0290.  Works out of Olympia hospital and is familiar with the Kock pouch and the BCIR pouch.  Works with Dr. Don Schiller, but Dr. Schiller is retiring soon. 

Also, Dr. David Sung has passed away.

Dr. Jacques Heppell at Mayo Scottsdale who did my revision  (with Keith Kelly) also retired.  I think Dr. Kelly passed away.

Dr. Ravi Kiran

Dr. Bo Shen

Both are located at NewYork-Presbyterian in NY, NY. 

Dr Rehnke is under investigation and being sued again and the BCIR center is possibly closed, call to verify.

I have a few Dr I did not see on the list or have moved 

1-Dr Bashir in Ohio # 614-293-8000

2-Dr David Dietze #216-841-7874  Cleveland but not at clinic any longer

3-Dr Andrew Ross # 561-395-2626   Florida East Coast

K pouch surgeon Dr. Sheriff Shawki has left the Cleveland Clinic and is now at the Mayo Clinic.  

Dr. David Dietz is at University Hospital in Cleveland. His website notes he is accepting new patients.  216-844-7874  

He did my surgery in 2015 and I was extremely pleased with the results. Just  to add, he removed scar tissue on my intestines. This resulted in going from as many as three painful (and dangerous blockages) a week to none since then.  Obviously I highly recommend him.

Dr David Beck has semi retired and left New Orleans for Vanderbilt in TN, his number is 1-615-322-2063 or 322-4035

good luck

I am updating a previous post here: I DO NOT recommend Dr Pokala Kiran and I strongly suggest that you AVOID HIM at all costs. If you want details, feel free to PM me.

I agree 100%.
He did my last revision in August 2019 and I’m doing great!

Dr Earnest Rhenke has retired

Dr. David Sung of Santa Monica California is deceased. Wonderful surgeon!

Do just about all colorectal surgeons do Kpouch surgeries??? I am not sure

Lauren of Emerald City- only a very small number of colorectal surgeons perform K pouch surgery. Most of them prefer J pouch surgery.

I meant to say- J pouch surgery or conventional Brooke Ileostomy surgery.

@Kim S posted:

Lauren of Emerald City- only a very small number of colorectal surgeons perform K pouch surgery. Most of them prefer J pouch surgery.

Thank-you

J-pouch surgery is an option for some but not all patients. The surgeon who removed my colon cut too much tissue so a J-pouch was not an option. I am very, very happy with my K-pouch, though.

There are maybe five surgeons in the world who are highly trained and skilled enough to create continent ostomies like K-pouches and BCIRs. WARNING: there are a LOT of unscrupulous surgeons who CLAIM that they know how to do it, or that they can do repairs, and instead damage the continent ostomy or even REMOVE it. PLEASE be careful when choosing a surgeon. Check these boards for RECENT recommendations from patients who have actually been treated by a surgeon and endorse his/her surgical skills and post-surgical care.

@sldrx posted:

J-pouch surgery is an option for some but not all patients. The surgeon who removed my colon cut too much tissue so a J-pouch was not an option. I am very, very happy with my K-pouch, though, and again highly recommend

Dr Kiran at New York-Presbyterian/Columbia University Hospital
(212) 342-1155

There are maybe five surgeons in the world who are highly trained and skilled enough to create continent ostomies like K-pouches and BCIRs. WARNING: there are a LOT of unscrupulous surgeons who CLAIM that they know how to do it, or that they can do repairs, and instead damage the continent ostomy or even REMOVE it. PLEASE be careful when choosing a surgeon. Check these boards for RECENT recommendations from patients who have actually been treated by a surgeon and endorse his/her surgical skills and post-surgical care.

Thank-you

Were you mad originally at the surgeon that cut too much tissue off???

The surgeon who cut off too much tissue knew I had a prime malpractice lawsuit on my hands... so (without mentioning 'lawsuit') he offered to send me to his surgical mentor — who happened to be the head of colorectal surgery at the Cleveland Clinic and the top K-pouch surgeon in the world, Victor Fazio. I would never have found out about K-pouches if this idiot surgeon hadn't been trying to save himself from a lawsuit! And I could not have gotten luckier -- the late Dr Fazio is a legend who other colorectal surgeons talk about with reverence and awe. So a disaster turned into a miracle. Yes, I was angry but I was also choosing my battles carefully. I'd been so sick --down to 75 pounds at one point  -- and I had to focus on the future.

@sldrx posted:

The surgeon who cut off too much tissue knew I had a prime malpractice lawsuit on my hands... so (without mentioning 'lawsuit') he offered to send me to his surgical mentor — who happened to be the head of colorectal surgery at the Cleveland Clinic and the top K-pouch surgeon in the world, Victor Fazio. I would never have found out about K-pouches if this idiot surgeon hadn't been trying to save himself from a lawsuit! And I could not have gotten luckier -- the late Dr Fazio is a legend who other colorectal surgeons talk about with reverence and awe. So a disaster turned into a miracle. Yes, I was angry but I was also choosing my battles carefully. I'd been so sick --down to 75 pounds at one point  -- and I had to focus on the future. The surgeon I keep recommending (Dr Kiran) was trained by Dr Fazio himself.

Dr Kiran at New York-Presbyterian/Columbia University Hospital
(212) 342-1155

LOL, you are funny! I love it! I also love your optimism! You must be a really happy person! We all can learn a lot from you. You must be stress-free too.

I hear K-pouches are a great alternative to a ileostomy. Its probably hard to find a gastro that is experienced with scoping it for check-ups.

How often do you have to empty out your K-pouch??? Every 3-4 hours right?

And how often do you have to change catheters???

It must be hard to clean the catheters and taking it with you wherever you go too. You guys probably keep the catheter in a bag to take it with you when you go out.

YES, I HIGHLY HIGHLY recommend the K-pouch! There was a whole year between the removal of my colon and my K-pouch surgery when I wore an ostomy bag so I know what that entails. Frankly, I hated wearing the bags and emptying them and all that went with it. The K-pouch has been one of the greatest miracles of my life and I post here and recommend my surgeon so that people know they have options that most surgeons won't even mention because they don't do the surgery themselves.

How often I empty the pouch depends entirely on what and when I eat and drink, and if I'm having a busy day and don't want to have to empty her frequently, I can adjust what I put into her -- less gassy foods, less bulky salads.

Catheters will be covered by your medical insurance and you just rinse them out in the sink when you're done intubating. They're made of flexible silicone, and they stay pretty clean for weeks but you can change them as often as you want. I keep one in a baggie in my handbag with a packet of lubricant so I can empty her 'on the road.'

Knowing what I know  with 18 years of experience I would definitely get this surgery again even if I lived a few hours away from the doctor I needed to see if I had any problems. I traveled to Cleveland twice to get this surgery and still think it was one of the BEST decisions I ever made.

Agree about the expertise of Dr. Kiran.
He revised my K pouch in 2019 and this year it will be 39 years old.

@sldrx posted:

YES, I HIGHLY HIGHLY recommend the K-pouch! There was a whole year between the removal of my colon and my K-pouch surgery when I wore an ostomy bag so I know what that entails. Frankly, I hated wearing the bags and emptying them and all that went with it. The K-pouch has been one of the greatest miracles of my life and I post here and recommend my surgeon so that people know they have options that most surgeons won't even mention because they don't do the surgery themselves.

How often I empty the pouch depends entirely on what and when I eat and drink, and if I'm having a busy day and don't want to have to empty her frequently, I can adjust what I put into her -- less gassy foods, less bulky salads.

Catheters will be covered by your medical insurance and you just rinse them out in the sink when you're done intubating. They're made of flexible silicone, and they stay pretty clean for weeks but you can change them as often as you want. I keep one in a baggie in my handbag with a packet of lubricant so I can empty her 'on the road.'

I have annual checkups with Dr Kiran in NYC, where I live. (Dr Kiran at New York-Presbyterian/Columbia University Hospital (212) 342-1155) I had no problems for years and years so I don't know that you really need to have an annual checkup -- but knowing what I know  with 18 years of experience I would definitely get this surgery again even if I lived a few hours away from the doctor I needed to see if I had any problems. I traveled to Cleveland twice to get this surgery and still think it was one of the BEST decisions I ever made.

WOW thank-you for all of that insight!

I believe its recommended for us "POUCH" people to get scoped every 1-3 years.

I love how you call your K-pouch "HER", I do that too with my J-pouch. Have you named your K-pouch???

She's called The Princess, Miss Pouch. She's 'the princess' because she can have ANYTHING SHE WANTS. Miss Pouch is a miracle and very, very precious. I consider myself incredibly lucky and I do my best to take very, very good care of her.

@sldrx posted:

She's called The Princess, Miss Pouch. She's 'the princess' because she can have ANYTHING SHE WANTS. Miss Pouch is a miracle and very, very precious. I consider myself incredibly lucky and I do my best to take very, very good care of her.

LOVE LOVE THIS!!!! Cool name!!!! The Princess Miss Pouch is a perfect name

I named my J-pouch, "The Emerald City Of OZ". I am a huge WIzard of OZ fan, I read all 15 books. Emerald City is a magical city and so is my pouch. I call her EMMIE for short

An update: Prof Jack Mackay, listed for Australia, has passed away.

@Kushami posted:

An update: Prof Jack Mackay, listed for Australia, has passed away.

Sorry to hear that!