I just got thru 2 awful visits to ER's (3 days apart) with tons of yellow, watery vomiting and diarrhea, terrible nausea ,major dehydration with ghastly full length leg pain, no fever. Waited 2 hours for fluids. I've had my pouch for 27 years. What did they find? Not much. Maybe a virus? Put me on Flagyl and I finally got better. Was whipped for 10 days, totally crashed. Besides the awful treatment I got at the first ER I've now come across that I have UC in my paperwork. 5 times. This is after I hand them a piece of paper with my detailed history, meds, etc. OK, I know, most docs have no idea what a jpouch is. Even lots of GI docs in smaller cities. When I try to explain, no colon=no UC, they simply don't believe me. I've had pouchitis from day #1. This misrepresentation drives me totally crazy. Along with the other mistakes I found in my paperwork. I am furious, upset, sad and frustrated beyond belief. I live in Lyon France and they aren't used to patients chiming in on medical stuff. When I see my GI doc on Thurs. (was gone when this happened), I'll be asking for letters from him personally so I can carry them with me at all times so other medical staff take me seriously, act promptly and don't treat me like a senile 64 year old woman. Thanks for having this place for me to let it rip.
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