https://pubmed.ncbi.nlm.nih.gov/38647203/
“3-Dimensional Pouchography: A Proof-of-Concept Study of a Novel Technique for Visualizing Ileoanal Pouch Anatomy & Morphology in Normal and Mechanical Pouch Complication Patients”
They even included someone with megapouch! (I have megapouch.)
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My UC progressed to toxic mega colon which is rare. I’m wondering if you had mega colon? And this may have made you more susceptible to mega pouch? Or are they unrelated ?
@Rayanna8 posted:My UC progressed to toxic mega colon which is rare. I’m wondering if you had mega colon? And this may have made you more susceptible to mega pouch? Or are they unrelated ?
As far as I know, they are unconnected. I didn’t have mega-colon, and it’s not mentioned in the research paper on megapouch by Shen and Sashi as a risk factor. So I don’t think you are at any greater risk of getting megapouch than the general j-pouch population.
I’m sorry to hear you had mega-colon. Did that complicate surgery?
Thank you for the info. Very much so. It took 8 hours for them to unstick all the little pieces from my organs and I had an accidental perforated lung. Mine was left too long.
Best of luck to you.
