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12 hours.

It's possibly the longest I've managed without a BM; still visited the toilet to pee though.

Not purposely resisted the urge or sensation to go, either; I rarely do.

To add; at the 12th hour, I did have a BM; I wasn't constipated, whether that's even possible with a J pouch.


...... is not an achievement to celebrate ?

Prior to my J pouch surgery, one of my main concerns was.......Would emptying my J pouch interfere with my day to activities and how often would I need to empty the pouch ?

At the time, I was having to empty the colostomy bag every 2 to 3 hours and once it was getting past the 2 hour mark; the bag would be ballooning like an inflated air bag.

So, to achieve 12 hours without the need to evacuate my J pouch; I thought was worthy of a post.

Last edited by Former Member
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Yeah! Sounds like a record to me! Longest I go without a BM is 6 hours when I get to sleep! My S Pouch has always been problematic, and I empty my pouch 10-13 times per 24hrs! Yesterday I spent 8hrs on the toilet emptying my pouch, so I've increased my Loperimide(4mg x 5 times).

I am totally wiped out each day! Not surprising though!

Rev Lenny

@Rev Lenny posted:

Yeah! Sounds like a record to me! Longest I go without a BM is 6 hours when I get to sleep! My S Pouch has always been problematic, and I empty my pouch 10-13 times per 24hrs! Yesterday I spent 8hrs on the toilet emptying my pouch, so I've increased my Loperimide(4mg x 5 times).

I am totally wiped out each day! Not surprising though!

Rev Lenny

Sorry to hear you’ve been having a hard time with it; hope things begin to improve, soon.

I forgot to consider when sleeping; on a weekend, I probably Sleep for 10 to 12 hours on a regular basis and without the need to use the toilet.

 

.

Last edited by Former Member

I heard read that if you keep resisting the urge to poop its more than likely going to create problems in the future. One major thing is that the brain can stop responding to signals on when its time to poop. Looks like its starting. 

You and I have had many conversations on not doing that, I respect the fact that you want to do your own thing though. This situation that you are in right now is really worrying me.

 thanks!

I've had a good run with no concerns regarding my pouch output until these past few weeks. I was admitted to hospital last week by my doctor with what he thought was pouchitis, but after blood tests were done they couldn't find anything! My nurse said it may have been gastroenteritus. I may ask my dr for Cholestrine as that has helped me in the past. Another concern is a lump which my wife has found in my lower back(possible Desmoid Tumour?), which I need to see the dr about. 

I have a CT Scan coming up to try and see why I am losing weight. 12 months ago I weighed 308lbs and now I weigh 182lbs. My appetite is a shadow of what it used to be, its nothing to do with wanting to lose weight! Although the weight loss has been welcome. I just hope its nothing sinister!

Right! Guess where I'm off to?! Yes! The toilet to empty my pouch again!

Jeezzzzzz!!!

 

The Rev!!!

I heard read that if you keep resisting the urge to poop its more than likely going to create problems in the future. One major thing is that the brain can stop responding to signals on when its time to poop. Looks like its starting. 

You and I have had many conversations on not doing that, I respect the fact that you want to do your own thing though. This situation that you are in right now is really worrying me.

Hi Lauren,

strange wrote - 

Not purposely resisted the urge or sensation to go, either; I rarely do.

he's not avoiding going to the loo, which is wise! but it is nice when you can have a few hours off!!!

@Rev Lenny posted:

all is sweet Lauren. you are quite right about not holding in what needs to come out!

always take heed to your body's needs!

Thanks! Strange does not agree with that. A lot of people on here hold there poop in because doctors/surgeons tell them too.

I read that if you keep holding poop in, the brain stops responding to poop signals, when that happens- that is trouble lol. Strange mentioned he did not poop for 12 hours, looks like the trouble is starting. 

I wish people would know that not every doctor/surgeon is right. Oh well I guess.

Thank-you again Rev Kenny

I heard read that if you keep resisting the urge to poop its more than likely going to create problems in the future. One major thing is that the brain can stop responding to signals on when its time to poop. Looks like its starting.

You and I have had many conversations on not doing that, I respect the fact that you want to do your own thing though. This situation that you are in right now is really worrying me.

You appear to be mis informed.

A healthy person, with a colon, who chooses to withhold the desire to evacuate can possibly cause all kind of complications and it’s probably considered a psychological disorder.

Within the first few weeks, maybe months since takedown, it’s suggested to resist the urge to empty the j pouch when the desire arises and by doing so, this not only stretches the J pouch but it also conditions the brain to recognise the various urges and sensation and learn to differentiate.

I don’t prevent myself from emptying my pouch but by attempting to do so during the fist couple of weeks since takedown, I’m able to differentiate to achieve a more manageable outcome.

Your opinion/fear of this is so wrong.

I’ve never actually considered sleeping hours, I’ve probably slept for 10 or 12 hours, without a BM most weekend during the last 6 years

Last edited by Former Member
@Rev Lenny posted:

on occasion when I have had to hold my poop in due to no access to a toilet I start feeling sick!

so.........

you know what to do.......

go the loo!!! 

He will not listen Rev Kenny, some people just gotta learn the hard way. There are so many complications that can happen but some people are just very close-minded. Some people on here that have held their poop in have suffered obstructions/ blockages and hernias but if people do not want to see that as a warning then oh well I suppose, we just gotta respect it and let it go.

So Rev Kenny, we will continue going the loo

Last edited by Lauren Of Emerald City

He will not listen Rev Kenny, some people just gotta learn the hard way. There are so many complications that can happen but some people are just very close-minded. Some people on here that have held their poop in have suffered obstructions/ blockages and hernias but if people do not want to see that as a warning then oh well I suppose, we just gotta respect it and let it go.

So Rev Kenny, we will continue going the loo

It’s not that I won’t listen; it that you are ill inform and are failing to understand, despite how many times I explain.

I’ve not posted my 12 hour record on here to brag that I’ve been resisting the urge to use the toilet for 12 hours.

After a BM in the morning; I had no urge, sensation or need to use the toilet, other than to pee, for 12 hours.

Resisting the urge to go, not long after takedown, is only practiced in the first few weeks or months; and is kinda like learning to distinguish the difference between dangerously hot as a child.

As Adults, we don’t continue to pick up or touch items that could be hot and dangerous, because we’ve learned to differentiate as children.

Whilst attempting to resist the urge, not long after takedown; the moment you start to feel sick, bloated or uncomfortable, then you’ve resisted for far too long and need to stop and just go.

Resisting the urge is a method practiced to reduce daily BMs; and as I currently only endure the disruption of 3 to 4, maybe 5 BMs per day; compared to 13, then it obviously worked.

I only briefly practiced such a technique, not long after my takedown, whilst under the guidance from St Marks Hospital; the Worlds leading J pouch Surgery Hospital.

I posted my 12 hour record on here to inform those considering J pouch surgery, as to what maybe possible.

The most important questions when I was considering J pouch surgery, was; how many BM per day and how frequent will BMs be.

I’m certainly not suggesting that all recipients of J pouch Surgery, spend every waking hour resisting the urge to empty their pouch........although by doing so during the first few weeks or months after takedown, they too, may endure only 3 to 4 BMs per day, rather than 13.

Last edited by Former Member

We’ve seen several strongly worded claims here that delaying bathroom trips can have serious consequences, but I’ve never seen a reputable scientific article that supports such a position. I’d be happy to read something that’s based on evidence. Without that supporting information we may be veering into either personal experience that’s being generalized in an exaggerated way, or (worse) overconfidence in unfounded speculation.

When your doctor gives you advice it is often highly specific to your particular situation. It’s often helpful to share that experience here, but it’s rarely helpful to assume (or insist) that advice applies equally well to everyone.

@Scott F posted:

We’ve seen several strongly worded claims here that delaying bathroom trips can have serious consequences, but I’ve never seen a reputable scientific article that supports such a position. I’d be happy to read something that’s based on evidence. Without that supporting information we may be veering into either personal experience that’s being generalized in an exaggerated way, or (worse) overconfidence in unfounded speculation.

When your doctor gives you advice it is often highly specific to your particular situation. It’s often helpful to share that experience here, but it’s rarely helpful to assume (or insist) that advice applies equally well to everyone.

My understanding, is what’s called Stool Withholding, which, I assume; is a psychological disorder and according to snippets I’ve read online, it appears to affect young children.

As I believe it’s a psychological Disorder, then I assumed adults may suffer from such a condition; I also assumed that withholding stool in such a manner, is probably not very comfortable and may cause complications, as a result of withholding a mass which shouldn’t be withheld.

However, my 12 hour record has nothing to do with; withholding stool or resisting the urge to empty my pouch.

I just so happened had no need to use the toilet, other than to pee for 12 hours.

No withholding stool or resisting the urge to empty my pouch.

Which, for myself and maybe for others, is a good thing.

Last edited by Former Member

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