Terrible gas

I've had a Jay pouch for about 28 years and really no issues at all!

About 3 weeks ago I started experiencing terrible lower gas pains and last night I thought, maybe something is wrong with my pouch.. I've never experienced this before and nothing has changed in my diet that I can think of. The gas pain start maybe around noon and go sometimes all the way until I wake up the next day.

I have always gone to the bathroom probably twice the middle of the night and now I go 3 to 4 times. I have always suffered from diarrhea. On average, I probably have 7 b movements a day, not counting night.

During the past month I've also had a very hard time not leaking in the middle of the night which is incredibly embarrassing. Sometimes I will leak three different times during the night! Sometimes this has nothing to do with the gas other than I can't seem to hold it in me at night.

The gas pains that I'm experiencing are so strong that I feel like something is going to come out of me if I'm not holding back the pressure. There's also immense rumbling in my stomach but it's all down very, very low and I would say a lot of anal or rectal pressure because of the gas.

Have any of you experienced this? Since I never have issues with my colitis, I do not have a GI doctor.

11/22/2311:47 AM

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Scott FMember

It’s probably time to get a GI doctor. I’d guess that this is a simple case of pouchitis (though there are other possible explanations). If it’s pouchitis a 10-14 day course of Cipro or Flagyl usually clears it up nicely.

11/22/235:41 PM

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Sara MarieMember

Scott, in your experience, does Pouchitis cause gas? Or do you think it's just the pouch being sensitive to the normal stuff, so it just feels like more gas?

11/23/2310:40 PM

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Scott FMember

I don’t think pouchitis usually increases the quantity of gas - that’s more often associated with SIBO. When my pouchitis is out of control, though, my pouch is sensitive to everything and cramps up frequently, and that can feel like a gas problem.

11/23/2310:49 PM

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New577Member

Whenever I have a SIBO occurrence, much more gas is produced. The Gasx pills I take 3 times a day, stop working. SIBO usually presents itself with watery BMs plus alot of smelly gas. It’s diagnosed with a hydrogen breath test. My GI will treat on symptoms.
the goto drug is xifaxin, but many insurance plans either won’t cover it, or it’s horribly expensive. I usually take bactrim ds for 14-21 days to clear it up.

as Scott said; time to get a new GI.

11/23/2311:47 PM

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vanMember

@New577 posted:
Whenever I have a SIBO occurrence, much more gas is produced. The Gasx pills I take 3 times a day, stop working. SIBO usually presents itself with watery BMs plus alot of smelly gas. It’s diagnosed with a hydrogen breath test. My GI will treat on symptoms.
the goto drug is xifaxin, but many insurance plans either won’t cover it, or it’s horribly expensive. I usually take bactrim ds for 14-21 days to clear it up.
as Scott said; time to get a new GI.

My GI doesn’t talk about SIBO. Do you get increased bowel motions or abdominal pain? . How do you tell between pouchitis vs SIBO.

11/25/234:54 AM

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New577Member

I suspect that pouchitis, Cuffitis and SIBO all have some similar symptoms.

As to your question, what stands out, is the very watery BMs that occur one after another with no solid type ones. It just stays as a watery mess, with nasty smelly gas. No blood is present. Frequency and urgency occur to some degree but not as bad as the others.

eating lots of simple carbs (SUGAR!!) will definitely put me at risk for a bout of it.

it does not deter me, because it’s my one remaining food pleasure in life, but I try not to go overboard anymore.

11/25/2311:06 AM