Hi, how often do you perform an endoscopic examination of the J pouch? I've never been in 5 years so I don't know what to expect. If someone can write experiences, I assume that it is simpler than with the large intestine.
Thanks
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I’ve had a pouchoscopy every year, 42yrs.
always wanted to rule out cancer and other infections.
My prep is 2 enema’s, and no anesthesia for me.
Did the pouch always look good or did therapy need to be introduced?
@Enterin posted:Did the pouch always look good or did therapy need to be introduced?
Not always, Theres something called pouchitis, inflammation of the pouch. You can search for it on this blog. People take all sorts of different medication’s for this type of inflammation. I’m taking a biologic now, Entyvio for pouchitis/inflamation
Since I suffer from Cuffitis, my GI wants me to have it every 12-15 months.
if no issues he recommends every 24-36 months.
Since I still have (a small) risk of cancer I have opted for the more frequent scoping.
Thank you.
Just had my first in 10 years. (I do not have IBD). 2 fleet enemas the morning of and clear fluids only until the procedure. No sedation required. It's not exactly comfortable but it is not painful either. Done in under 3 minutes.
@ytcrockpot posted:Not always, Theres something called pouchitis, inflammation of the pouch. You can search for it on this blog. People take all sorts of different medication’s for this type of inflammation. I’m taking a biologic now, Entyvio for pouchitis/inflamation
What did you use as a cure for cufitis? Does the problem occur to you only periodically?
@Enterin posted:What did you use as a cure for cufitis? Does the problem occur to you only periodically?
I’ve never had cuffitis. I’ve have had pouchitis. And it’s treated all different ways, antibiotics, steroids, biologics. Comes & goes. They really don’t know why.
Thank you for your reply. Steroids rectally or pills?
@Enterin posted:Thank you for your reply. Steroids rectally or pills?
It depends on what your doctor orders. I take pills
I’ve been on canasa (mesalamine) suppositories for the last 18 months to keep the cuffitis from returning. It works for me.
I had proctitis/dysplasia in rectum, so the UC in the cuff is no surprise to anybody.
i just don’t ever want to deal with surgery again and I need to keep the inflammation to a minimum so as to prevent dysplasia/cancer in that area.
Pouchoscopy is an annual event for me to biopsy for CA screening (I had high grade dysplasia, mucosectomy was done, so no cuff left, but the surgeon still wanted annual scoping) It's done also to treat recurring prolapse in the pouch lining which causes SIBO type issues and incomplete emptying/leaking. So I get bands every year so far - 3rd time was this week.
Prep is Gatorade and Miralax, plus clear liquids the day before. I was never very good about having frequent colonoscopies when I had UC, but don't mind the annual scope now. It's good to know what's happening in there!
Hi, i am having a scope with a new doc in a new state friday...stinks that my old doc (my surgeon) could do it in his office...this time i have to go to surgery center, 2000 bill (300 is my part) instead of 25 copay...do y'all have to go to surgery center or do it in the office?
2 fleet enemas, clear liquids for prep..3-5 minutes of not having fun is what the scope used to take....🤪
@Indy_Dave posted:Hi, i am having a scope with a new doc in a new state friday...stinks that my old doc (my surgeon) could do it in his office...this time i have to go to surgery center, 2000 bill (300 is my part) instead of 25 copay...do y'all have to go to surgery center or do it in the office?
2 fleet enemas, clear liquids for prep..3-5 minutes of not having fun is what the scope used to take....🤪
Yes, insurance does not allow docs to do it in the office any longer. Probably cause insurance makes more money this way.
20+ years ago, i used have sigmoidoscopies performed in the GI office. Those days are long gone. They opened an endoscopy center and started to collect the big $$$. Besides if they are going to offer anesthesia services, they need anthologist/nurse anesthetists in the building.
It turns out, that if the GI is not snaking up past the pouch inlet , we really don't need any sedation.
Ahh, the good old days.