I have had constant issues with my jpouch since I have had my takedown. Before my takedown, I was doing great with the bag. Ate what I wanted, gained good weight and felt great. I developed pouchitis rather quickly (1 year after surgery) but it went undiagnosed for a while. I had a scope down and I had pouchitis and inflammation proximal to the pouch (right about the pouch) as my pouchitis was pretty severe and I think caused backwash because there is no valve to stop that from happening like when you have a colon to the small intestine. I have done multiple rounds of antibiotics and it has helped as I don’t feel the frequency as I once did or urgency/really watery stool.
I still have a problem forming stool and it goes from “okay” formed to logs. I never find a happy medium it seems. I always seem to have at least a tint of yellow to my on the outside and brown toward the center. I never know why this is or if that’s a problem. My frequency increases now when I have too much gas. One day I won’t really have a gas problem and I’ll got 5-6 times no problem with decent formation or good formation. The next day I get too much gas and my frequency be more because I have a lot of gas trapped. Most bathroom visits don’t result in anything other than gas other than a “wet fart” we will call them.
I take a probiotic and I think it helps? I struggle with citrucel because I never seem to find the right does for myself.
any suggestions or anyone have similar problems please let me know. I am considering going back to my ostomy because I really was the happiest with that. I’m kind of at my end.
