I’m in the hospital for the 20-nth time in two years. I keep getting partial obstructions but they never have a transition point on scans (a place where they see narrowing or a stricture causing it). It’s more like a paralytic ileus. The bowels become dilated like typical obstructions, but for reasons no one can figure. They have brought in GI and colorectal consults, dieticians, a general surgeon and even a rheumatologist. They also have a special GI clinic that only deals with IBD and j pouches. I’m in good hands here.
I have pretty much chronic lower right quadrant pain that ranges from mild to debilitation, nausea and malaise, and have been unable to work for nearly 2 years. No issues with leakage or urgency, but stools are all over the place in terms of consistency, colour etc. I’ve had these tests: CT and MRI enterography, multiple scopes, barium follow through, gastrograffin follow through, motility tests, defocography.
I was just wondering if anyone ever had this-I think it’s called “distal partial small bowel pseudo obstructions” with terrible pain in lower right abdomen. My surgeon tried a rectal tube as he thinks maybe the pouch isn’t emptying properly causing the back up and all the bowel dialation. It seemed to help a bit. They just ruled out any motility disorders today.
The defocography showed my pouch is malpositioned (it wasn’t for 18 years) and the vagina and pouch are running into each other when I go to the bathroom but not at rest.
GI seemed convinced it was chrohns given some related skin/joint issues but on my scope today it was perfectly healthy. No bowel wall swelling etc on the ct and mri.
I might opt to lose my pouch which I’m becoming more ok with as I’m sick of living like this, but I just want to understand what this is, and that if I do that, it will fix this. I’d be very very mad if I went through all that and then had these same problems. I have a good team here who haven’t finished their work up but I guess wanted the patient perspective from all of you.
so, whose had mysterious functional (not mechanical) distal small bowel obstructions?