Bilirubin levels

sahbumnimMember

Have any of you experienced high bilirubin levels?

10/7/2312:25 AM

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Sara MarieMember

Not yet.

10/8/2310:06 AM

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sahbumnimMember

Thank you

10/8/239:10 PM

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CVPMember

Yes! After my total protocolectomy, I caught a bug and went in for fluids. When they took my blood and ran my numbers, my bilirubin (and other liver numbers) were off the charts. I was hospitalized for 4 days and eventually it came down. Doctors had no idea what happened but threw around that maybe I had Gilbert’s Syndrome. Since then, my number is a little elevated but no one is worried about it. The whole thing was strange.

10/11/231:15 PM

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sahbumnimMember

Thank you for your response
I’ve had my pouch since 2005 and the past 2 years my level has been rising. After covid I got pouchitis and it went even higher.

10/19/239:33 PM

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