Colectomy done a year ago and doing well. Thanks to my PSC, they have recently found "suspicious" cells in my common bile duct that they feel may potentially turn into cancer. The problem with bile duct cancer is its very hard to diagnose and very hard to treat. They feel as though catching cells in the early stage and removing them will give me "50 more years." Im desperately trying to find someone like me to talk about this with : ( My main concern is having what my quality of life will be lacking so much tissue/organs.
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