Hi all, I've been a member on here since 2022 but haven't posted anything. I do tend to get scared too and I gotta work on that. To get to the point though, I have a J-Pouch that I've had since 2020. Got my colon removed in April 2020 and have had my J-Pouch since September 2020. Over the years I've been struggling with a lot of things that all lead back to my J-Pouch. I have Chronic Pouchitis, Constant abdominal pain, Weakness/Fatigue, and Fecal Incontinence, and overall I feel like I'm sicker than I was when I had my colon. With the abdominal pain and frequent urges to use the bathroom (I go 10+ times a day), along with bloating that's been coming and going... I can't figure out what to do to help myself or what to say to my doctor about changing the dose, etc of a medication I take for the pain/cramping/diarrhea. I've been taking Dicyclomine 20MG 3 times a day as needed for years but lately, I've been needing to take 4 as needed, due to the abdominal pain/cramping. I did a little research and I know Hyoscyamine works the same as Dicylomine does for the same purposes. Has anyone taken either of these medications before your J-Pouch surgeries or after? I know I shouldn't ask for any painkillers because of how addictive they can be, so I'm just hoping for a better alternative or any advice on what to do from here. I take Imodium once a day, I take a probiotic, and I watch what I eat or what foods seem to trigger my symptoms. I'm getting to a point where It feels as if I'll never be able to live a somewhat normal life again.
If anyone reading this has any suggestions or advice for my dilemma, I'd appreciate it. Hope you all have a great rest of your week.
