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7 days ago i had my takedown surgery down and would like to know how long should I expect Butt Burn. Does it go down after few months once you have introduced regular fiber foods .

Posted by Rpatel ·

Comments (37)

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Originally Posted by NMGuy:

I agree with what RyanM has said, Meta is a maintenance method to reduce acid and to "help" gain a cleaner movement.  I really don't think it will reduce the number of movements significantly for the majority of people.  The Bidet or the warm shower should be used more frequently than any other aforementioned activity, it helps SO MUCH more.

In fact, it is only with a warm rinse regiment was I able to go back to ALL of the foods I enjoyed pre UC.  I avoid no foods unless if the rinse is not available to me.  I don't rinse every time, but your butt will tell you when one is needed.  Sometimes the butt wants a warm rinse for even the most benign food too! 

I so agree. Everyone will have their own experiences while adjusting but there are some very basic agreed upon items such as warm rinses, bidets, metamusil (which I can NOT ...grrrrr...get here), psyllium (ordering on-line for me) etc etc

 

...and yet, we are oh so careful, nothing should go wrong, perfect day of doing all the right things, ticking the regimen boxes and you will still find for some unknown reason; which even a crystal ball wouldn't help with; that you'll perch on the porcelain trying to turn your innards, outwards....*sigh*....

 

.......Best thing to do when this happens...seriously, stand on the scales, look at your weight and go woooo-hoooooo!!.... as you'll never feel any lighter or have the evidence telling you that a kilo has just up and disappeared....

I agree with what RyanM has said, Meta is a maintenance method to reduce acid and to "help" gain a cleaner movement.  I really don't think it will reduce the number of movements significantly for the majority of people.  The Bidet or the warm shower should be used more frequently than any other aforementioned activity, it helps SO MUCH more.

In fact, it is only with a warm rinse regiment was I able to go back to ALL of the foods I enjoyed pre UC.  I avoid no foods unless if the rinse is not available to me.  I don't rinse every time, but your butt will tell you when one is needed.  Sometimes the butt wants a warm rinse for even the most benign food too! 

If you can't find Metamucil, try psyllium husk....it's also much more economical. I also eat a great deal of rolled oats in home made muesli which I make gluten free and without any sugar added or even just porridge from instant oats helps to bind the stool as it goes through the ilium. It will also bind the excess water and acid too.

 

There have been some good surveys over the last week or so that had some excellent advice on various matters such as pouchitus, reducing BM's, using pain killers, antibiotics etc etc.

One thing I have just started to do in the last week, is make notations in doctors.com on various medications mentioned throughout this forum. You can add your own notes and it also gives you a good comprehensive rundown on pros & cons of the various medications.

It'll get better but don't expect instant miracles, your body has to adjust to managing with the new system installed.....

cheers

Liz

I cant believe no one is mentioning metamucil.  This has been the biggest assist with acid at passing.  Take this with every meal.  My nurse in hospital post surgery said it would be my best friend.  She was not kidding.  Try to reduce acid in the system.  Things like baking soda in water and peptobismol are also very helpful.  Then follow up with a Toto bidet (there are other brands) to keep things clean at passing and life will be a whole lot better.

Originally Posted by NMGuy:

Most of the time I go in the shower and rinse with the hand held.  I even carry my hand held on the road with me and install in showers if I am going to be there more than one night.  For me, wipes, creams and diets are just good maintenance activities but will never "fix" 6-10 BMs a day.  A good hot/warm rinse repairs/cleans alot of pooping abuse.

I agree and I always use a bidet hose. These are an attachment that screws onto the inlet hose on the cistern and are absolutely brilliant. Google the term "bidet hose" and you'll see images and understand why many expats in Asia call them bumguns.... Saves having to get into the shower to clean up and saves a great deal of time and paper.

 

NMGuy...I just read your comment further up and understand absolutely about the chilled effect on sensitive areas after I visited my sister. Depending on the house, it could be a huge job to plumb in hot water.

Last edited by Goentropo
You can order Calmoseptine on Amazon.... I also use a "portable hand held bidet" which helps greatly!!!  You can use it anywhere, anytime.  It was recommended at my j pouch support group and  was the best recommendation! Check them out on Amazon as well.

Looks like there's lot's of comments here with so many others personal experiences, when I had my j-pouch surgery the doc was very old school (but brilliant) with giving answers on what his other patients did (what worked & what didn't) after their surgeries, and many of my concerns were only addressed during follow-up appointments, now you have a great sounding board and so many answers all right here at this site. Amazing!

I agree with Ang35 regarding sitz baths and the bodies natural ability for toughening up the skin with time. I thought my Doc was crazy when he told my husband for the 1st few weeks at home he wanted the area from the bed to the bathroom covered with plastic and Under Pads (Peck Pads) on the bed and absolutely 'No Diapers'! The plastic was on for floor for safety, but this was done with teaching me to use my own muscles (Kegels) for control, an to make the distance to the bathroom. The Surgeon also wanted my bottom to be bare as many hours as possible so the natural air could help with the healing process (yikes); this was done usually when the Family was away at school, work & play. Like I said, very old school, but he was one of the original pioneers with this surgery. And look how far we've come with this surgery. At the beginning my days & nights were long and frustrating, but your body adapts, and now it's been decades and this resource is a blessing. 

Creams are used in severe inflammation and open sores, used for a road trip when your hand held shower is not available.  Constant use of shower WILL repair your butt to normal and keep the itch/burn away.  Good TP and wipes are also OK but will not stave off for ever the eventual burn/itch if you have around 8-12 movements.  When at home and lazy, I use a soft TP followed by a good baby soft baby wipe.  Most of the time I go in the shower and rinse with the hand held.  I even carry my hand held on the road with me and install in showers if I am going to be there more than one night.  For me, wipes, creams and diets are just good maintenance activities but will never "fix" 6-10 BMs a day.  A good hot/warm rinse repairs/cleans alot of pooping abuse.

All answers here are great but I will expand.

 

Regarding the bidet. In Asia, there is what is known as the Hose Bidet or "bum gun". It screws onto the inlet valve where water is directed to the tank for flushing. You need to fit a T piece on the inlet so the hose can be attached. At the other end you can have a pistol like control for stopping and starting the flow and adjusting the pressure. I swear by mine and they are just amazing. Type BIDET HOSE into Google and you'll see this simple, cheap and amazing device.

 

I also wrote at length of skin protection in the survey on incontinence. Below is the link to the post but there were several other posts in this survey that made some amazing comments...Particularly the on on the sacral nerve stimulater.

https://www.j-pouch.org/surveys...3#457716058478457583

 

I experienced severe butt burn in the first couple of weeks after takedown.  I thought it would never go away and sat in a tub for hours about 2 days after  as it was the only thing that would soothe it, it was unbearable.  After the "bath" day I started to use a sitz bath after bowel movements or used a cleansing bottle with warm water in it, over the area.  My doctor said that my skin would toughen up but I didn't believe him as it was sooo bad.  Turns out he was right and about 3 weeks later ( i can't exactly remember as it was a few years ago) it got better and didn't feel the burn anymore.  I used the cleansing bottle with warm water for 2 years after takedown for cleanliness after each bowel movement and used a barrier cream I got from the hospital made by Coloplast, it worked wonders for keeping any rash away.  Now 3 years later I never have butt burn as severe as what I experienced in the beginning nor do I need cream on a regular basis.  It will get better soon

Yes, lots of foods are a no no for me.  Anything no cooked.  Carrots are the worst.  Cannot eat nuts or corn.  Salad is bad too.  You'll see as you go along.  Meat mash potatoes, very well cooked veggies are you best friends.  No spicy food.  And when food gets "blocked" in my opening, I use a catheter to take it out.  Pieces of raw food are bad, be careful  And wash or use wipes EVERY time you go for a BM.  

 

It took me 14 months to recover from the worst of it, which was right after surgery. I still get what I call "busy butt" if I eat too many peanuts, or any high iron food, iron supplements, basil, or super spicy food. I use Konsyl powder, Anusol 2.5%, Calmoseptine and Tylenol 4 when it's bad. You'll figure out over time if you have any bad foodd.
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