Reply to "New Hope for those with Chronic Poucitis"

kkatMember

CTBarrister - You unfortunately seem to have alot of experience with chronic pouchitis.
I've had my pouchitis for the past year and a half and have been through a run of cipro, flagyl, and xifaxin, all of which have stopped working.
Do you know what the next typical treatment or "level" of treatment *should* be to try? Are there more antibiotics to try? Am I going to end up back on steroids or the drugs I so detested while I had UC?
I live in hawaii and am waiting to receive some corticosteroid enemas from the mainland but the docs out here are sub par so I'm stuck doing some coordination right now until I can get back to the mainland for a pouchoscopy and appt. But I know it's the $&#*(@*&$ pouchitis.
Thanks for sharing your experience and any suggestions.

1/27/139:42 PM

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