Reply to "just had jpouch removed"

Lauren Of Emerald CityMember

@BeenieBaby posted:
I just had emergency removal of my 9 year old jpouch due to an infection outside the pouch that was starting to go into my bone. According to an old MRI scan the infection started 9 years ago as a tiny abscess outside the pouch. Anyway, before this doctors were saying I have crohn's but after the tests and surgery they changed it to indeterminate colitis and let me go without any IBD medications. I am just a surprised and not sure what to think. Does anyone know what the prognosis is after getting an end ileo as far as quality of life? Also, I was following the SCD diet which helped before but now that I have an ileo is the SCD diet no longer needed? I am glad to be rid of the complications from the jpouch. I was getting so tired and it was hard to go to work or even go shopping toward the last couple years.

I wonder why they never caught the abscesses?! Did they take biopsies during the pouchoscopys??? Where did the infection come from and how did it start???

8/26/208:11 AM

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