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Reply to "Is J-Pouch Surgery Worth it?"

I though a lot about this question of whether or not I'd do the j-pouch surgery again.  I was diagnosed with UC while pregnant with my fourth child and had my colon removed when she was only 5 weeks old. (Total time between diagnosis and colostomy about 3 1/2 months.) I had the 3 part surgery with total hook-up 5 month later.My GI told me that with surgery I'd be completely healed.  That is not true.  As others have said, the first year with a j-pouch is difficult. You will learn what foods work for you and what won't.  I was totally unprepared for this.  My largest problem was a lack of sleep because my bowel liked to be awake at night.  This made life difficult raising toddlers.  A couple of years ago I finally changed GI's at the recommendation of my surgeon and he put me on some great medicine that allowed me to have a lot more control of my gut and its output.  I am finally able to sleep.

I give you all this detail not to discourage you, but to let you know that just like having UC, having a j-pouch is not the perfect fix.  It has issues of its own that you will learn to adjust to with time and help from your GI and us. When I didn't sleep well and had bouts of pouchitis, I would have said don't do it; however, since I've gotten some medicines that have helped me, I'd say go for it.  Find a good GI that you like and who is knowledgeable about j-pouches. (Unfortunately, not all are.) Choose a surgeon you trust. Go into this prepared that healing is not an instant sprint, but a marathon that will get better with time.

Hope this helps

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