Hello.
I've been suffering from very bad foamy watery stools and urgency for the past 2 weeks. No fever and no blood in stools.
The very first wee, my watery stools were very green and when I went to see my GI, he told me that it is the stomach bug and he prescribed me Lopermin since I was going like 18 times a day.
Then, something didn't feel right so I went to go see my surgeon, who wasn't there, so I saw another surgeon. He did blood work, and my CRP was up to 2.4. He said it could be pouchitis so he prescribed me Cipro, together with some probiotics. I took it for 2 days but it wasn't helping much so I stopped on my own and went back to see my surgeon when he was available.
My surgeon did blood work and still, my CRP was up 2.2. He also did some stool tests, for which I won't get results for until next week. He also said he wants to do a scope so he did one for me the next day.
It turns out that he found 6 ulcers (inflammation) in my pouch - the upper area. I was shocked. He asked me if there was blood coming out of my stools and I said no. However, when I do put some steroid enemas in for my hemmorhoid, I do see some blood at the tip of the enema when I pull it out.
So my surgeon prescribed me some Pentasa enemas (I guess similar to Rowasa enemas) for 7 days and some probiotics. He also took biopsies of the ulcers, for which I will find out results for all next week together with my stool tests.
I had UC and took my entire colon out and did a temporary stoma before creating a j-pouch. My takedown was last May, so I've been with my pouch for more than a year. I've never suffered from pouchitis before and everything was pretty good after takedown. This is the first and major issue I'm having to deal with.
My question is, I fear that this may be Chron's?? Also, is pouchitis like this treatable? Will I have to live like this for the rest of my life?
Taking the probiotics my surgeon prescribed is helping me a ton. I'm now going to the restroom 6 times a day. I did start the Pentasa enemas 2 days ago. I'm not sure how that is helping but I did start.
I also stopped drinking coffee and stopped eating sweet junk foods and have been eating bland foods with steamed veggies for about a week now, so I've lost about 8 lbs.
I really fear that I have UC all over again or Chron's?? Whatever it is, my anxiety is killing me. I will find out the results for everything in about 5 days.
Is this treatable?? Will I ever get to drink my coffee again? How does everyone else cope with something like this? Anyone have a similar experience?
Are the ulcers from pouchitis or did they just form? Sorry...so many questions....just driving me nuts.
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