Just curious who has an ostomy, temporary or permanent. I just had my 3rd ileostomy surgery yesterday. Would love to chat with people who are currently using an ostomy. Having a tough time readjusting again.
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Send a PM to poster Cataja. She went from a problematic J Pouch to an ileostomy and seems to be doing very well. She was a regular here for a long time, and not so much any more. Her more recent posts indicated she was adjusting very well to the ileostomy and was doing well.
Perm ileo since 2001. Happy to chat any time.
healingwell has an ostomy forum
perm end ileo since march 2012.
diverting ileo for failed jpouch july 2010. Permananent ileo march 2012. love it. love it. love it. happy to help you adjust any way I can.
Hi Cate87. I had almost the same problem as you. This is my third ileostomy. This one is permanent. A day after my last fistula repair (2nd one), it leaked. It was devastating. I had the ileostomy surgery the next day. It was actually a relief. No more pain & burning & I could actually leave the house again. I'm going back in the hospital in 2 weeks to have the j-pouch removed. My Dr. feels it is crohn's even though the tests were inconclusive. I'm not thrilled but at least I can function. Send me a message if you would like to chat.
Hi Cate...as DB said I am adjusting quite well to my perm ostomy. It's all relative...I was very, very sick with my j-pouch, so the ostomy is a piece of cake comparitively speaking. Do I like having an ostomy...well no...I'd rather be healthy without any digestive disorders...but I have adapted well...and don't let it get in the way of too many things in my life. Feel free to PM me...hoping the best for you!
Went to an end ileostomy on July 9 2012. My J Pouch was a failure and I had incontinence. I managed for about 21 months but it was affecting my life style and I was adapting to an much less active life then I wanted. 3 weeks into the ileostomy I am still tweaking the pouching system but really enjoying more freedom. I am currently on no medication and have slept all night without getting up a couple of times, though sometimes I empty once. It isn't perfect but far,far better for me then the J pouch. My pouch is still in place and I will likely have it removed in the future.
Have had a Jpouch for 25 years. Had some drainage and acidy stool issues the last few years. Just had my gall bladder removed, output has slowed and no more acidic stool. LIfe if good.