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I use two 4x4’s (the cotton style, not the thin gauze style) folded into a thick square and mediocre tape. Some people use breast feeding pads, tissues, sanitary pads cut to size, Ampatch’s, etc. It depends on how much mucous they experience. I’m a creature of habit. I’ve used the 4x4’s for 38 years.

I use mini kleenex (pre-folded then I fold them in 2) and a 1/2 mini-pad stuck to the inside of my underclothes...I hate tape on my skin because I get very irritated so this works for me...I also have a lot of damp output so I just change the kleenex as needed and only change the minipad if required.

It is cheap, easily available and works for me...but I have noticed that American kleenex are made of a much more degradable cellulose and degrade quicker than the European ones...sort of melt to your skin...So you could use paper towel instead.

Sharon

Lauren  Are you considering getting a k pouch?  I agree with others it depends upon the amount of mucus output. I use the breast pad because I have lots of output. Sharon, you are correct about the difference in tissue quality. I haven’t found any US product that doesn’t disintegrate, at least with my output. Hope all of you are well, both physically and mentally. Tough times. Jan

I was using a regular type 2 x 3 inch band aid with a folded up paper towel. But since I have to empty the pouch so much pulling off a band aid that much is a bit much. Also I've use just the folded paper towels taped on, etc. Same issue with the tape. But I now use a 1/2 pad (sanitary napkin) stuck to my undies to contain any leakage. I use to cut the pad into 3 sections but I am now cutting it in half. I searched for stoma coverings and came across a discussion about stoma coverings - 'Stoma covering?' in 2012 on this forum. One person mentioned a product called AMPATCH. I emailed them requesting samples and Chris send me a number of samples.

This is the address for stoma covering it might give you more ideas:



@jan15 posted:

Lauren  Are you considering getting a k pouch?  I agree with others it depends upon the amount of mucus output. I use the breast pad because I have lots of output. Sharon, you are correct about the difference in tissue quality. I haven’t found any US product that doesn’t disintegrate, at least with my output. Hope all of you are well, both physically and mentally. Tough times. Jan

Hey Jan! And no as of right now. If my J-pouch ever failed, I wanted to learn more about the K-pouch so I can explore my options. I did not do well with a ostomy in the past so I was trying to learn more about the K-pouch system. I have not heard any negative about the K-pouch versus Jpouchs and ileostomies.

I am not sure about how others deal with pools etc but I never cover my stoma when swimming...in the sea or pool...I have a bathing suit over it, that is all. It might be my imagination but my stoma does not produce mucus or anything while I am immersed...not even in the tub...so if I empty my pouch and dry my stoma, I am good to go until I get out of the water (then I go to the washroom, dry my stoma and re-cover it).

@skn69 posted:

I am not sure about how others deal with pools etc but I never cover my stoma when swimming...in the sea or pool...I have a bathing suit over it, that is all. It might be my imagination but my stoma does not produce mucus or anything while I am immersed...not even in the tub...so if I empty my pouch and dry my stoma, I am good to go until I get out of the water (then I go to the washroom, dry my stoma and re-cover it).

WOW cool!! It is hard to take a shower with it, since the soap gets over it???

Because mine drips I put a bandage over it when swimming. If at the club I usually go to the sauna after and obviously don’t want anybody to see the stoma. Towel might fall down. Nobody has ever asked about bandage. Bandage also works for sex time. That said, no matter what your surgical solution is for UC there is always something to which one need adjust. Fortunate for all of us we have this website, with some fabulous people on it, who all help us learn how to adjust. For me it’s just part of life. If your J pouch is working then keep it. Jan

@skn69 posted:

What is wrong with soap? I wash my stoma with the same shower gel that I use for the rest of my body (fine, I prefer the stuff that is hypoallergenic or for babies but I don't use anything special)...What do you wash yours with?

Oh cool! i thought soap might infect it or something, I was worried lol. That is pretty cool how everything works for you

I do not have a K-pouch, I have a J-pouch. I was just curious on how a K-pouch works because i thought it was soo cool!! And a pretty good alternative to an ielostomy.

What made you get a K-pouch over a J-pouch??? And do you get pouchitis???

Last edited by Lauren Of Emerald City

Hi, Well, I have a lot of mucous, etc. coming out of me all the time. Will sometimes use Ampatch with an additional all gauze inside, only for very short time periods , as it doesnt hold enough.

Most of the time I use large Waterproof Bandaid also doubled gauze inside, On top of both of these I must use double thick folded paper towels. And still many times a day must change my clothes as they are wet all the way through! It has been quite a bit of money to keep up with all the supplies I go through.

My stoma is small but if it is touched, it bleeds, not sure how one does not cover it, also wouldn’t it be injured just from abrasion?
People are all different though and my issues may be due to having less intestines, I had 2 previous Jpouchs, for me, much easier to deal with, until they had to go. Again, every situation is different.
Big issue is finding medical care when you need it , as almost no one is familiar with the continent ostomy anymore. Just recently had experiences with that again and it’s scary.

Hope all of you are staying safe out there and enjoying life, finding something to enjoy every day even in these times.

Janice

@jan15 posted:

Because mine drips I put a bandage over it when swimming. If at the club I usually go to the sauna after and obviously don’t want anybody to see the stoma. Towel might fall down. Nobody has ever asked about bandage. Bandage also works for sex time. That said, no matter what your surgical solution is for UC there is always something to which one need adjust. Fortunate for all of us we have this website, with some fabulous people on it, who all help us learn how to adjust. For me it’s just part of life. If your J pouch is working then keep it. Jan

That is pretty cool! I say be proud of your stoma And yeah totally!!! Thank goodness for this website And yeah I plan on keeping my pouch until it breaks for sure. I was just curious to learn about K-pouchs because I think they are incredibly cool!

What made you get a K-pouch over a J-pouch??? And do you get pouchitis???

@JanW2 posted:

Hi, Well, I have a lot of mucous, etc. coming out of me all the time. Will sometimes use Ampatch with an additional all gauze inside, only for very short time periods , as it doesnt hold enough.

Most of the time I use large Waterproof Bandaid also doubled gauze inside, On top of both of these I must use double thick folded paper towels. And still many times a day must change my clothes as they are wet all the way through! It has been quite a bit of money to keep up with all the supplies I go through.

My stoma is small but if it is touched, it bleeds, not sure how one does not cover it, also wouldn’t it be injured just from abrasion?
People are all different though and my issues may be due to having less intestines, I had 2 previous Jpouchs, for me, much easier to deal with, until they had to go. Again, every situation is different.
Big issue is finding medical care when you need it , as almost no one is familiar with the continent ostomy anymore. Just recently had experiences with that again and it’s scary.

Hope all of you are staying safe out there and enjoying life, finding something to enjoy every day even in these times.

Janice

What made your two J-pouches fail???

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