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9 replies

When does the pain end or does it just keep getting worse?

skn69skn69Member
This is a huge rant.
Arghhhhh!
The pain in my joints, especially the right hip, sacroiliac and now my feet since July are so bad that I have problems standing up in the morning, getting out of bed without crying, getting off of the sofa after sitting for an hour or making it from the subway seat to the platform before the door closes on my face.
I hurt morning, noon and night, can barely turn over in bed and have yet to find a position anywhere, any time that is comfortable.
Once I start moving again it is ok but as soon as I stop...baam! It rusts shut, stops moving and generally freezes up.
I am still on the anti-inflamatories, upping doses and hoping for the best...but I think that I need to accept that this is it...it is not going to ever stop or go away.
I am only 52 and I am done. Darnnnnnn!
I finally got an apt with my rhumy for the end of March (and that was lucky!)but it has been since Nov since I have been able to see my GP...I keep going, waiting and leaving after 2hrs...I just can't sit there for hours.
Sorry for the rant but I hate this...isn't the rest enough, did I need this on top of everything else??????
Sharon
ps...on top of everything else I just lost my case against my insurance company...not only won't they pay but I have to pay their legal fees!
Arghhhhhh
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Jan DollarJan DollarModerator, RN, retired
Sharon, That just really sucks, in a big way! I wish that I could do something other than just empathize and listen. I know that you are pretty much stuck with the waiting game. It seems like forever ago that I first suggested that you needed a referral to see a rheumatolgist. IBD related arthropathies take forever to diagnose even when your doctors are paying attention, since the symptoms mimic other, more common, disorders. So much wasted time...

I can sort of understand the wait for the specialist, but this nonsense about not being able to make an appointment with your primary physician is just plain bupkiss! (Not the word I am really thinking! Wink ) You may as well not even have doctor offices, and just have everyone line up outside of the ER... Mad

But, I guess no system is perfect, maybe Sweden?

You probably are already doing everything you can without a prescription- OTC medications, stretching and movement exercise, hot showers, heating pads, etc... Fingers crossed that once you get this rheumy appointment, it is a good doc who actually listens and pays attention to your history.

Jan Smiler
R Rebe0505Member
sharon i am sooo sorry to hear all you are dealing with..and i know your situation is rather complicated with various auto immune issues .. but here goes nothing..

my zumba teacher here in santa barbara a women about 44 years old had come down with R.A 4 years ago..the way she tells it she was ready for a wheel chair..after seeing dr after dr. she decided to go alternative route not sure who she consulted but basically she went on very serious resticted diet..she never ate out and followed it strictly and also took three probiotics given to her by i guess her alternative med doc. after two years of following this regiment she had absolutely no symptoms or signs of r.a. and 4 years later she is one of the leading zumba teachers in u.s in her field..

now i do not know who she consulted but she did a lot of researching herself i know.. maybe you could check internet to figure out who to seek out..

anything and everything is worth looking into...
it will not be easy but living with what you have is far from easy too..some autoimmune diseases seem to really benefit by diet and R.A. IS ONE OF THEM..

my sincerest hope you get some relief and help soon..
skn69skn69Member
Hi Jan, Rebecca,
Thank you for the advice...
I am permanently suffering and yes, it does suck. Not being able to get in to see my GP means that I can not get a new order for my physio-therapist, am having more and more difficulty getting to work and generally am miserable.
I have gone back to a modified work-out. Not running up stairs in the park anymore but doing them slowly here in the house, 1 flight at a time + some yoga stretching and mild elastics and weights. Nowhere near last years performance.
I do feel much better after the work-out, no question but by the pm the pain is back with a vengence. I've upped the advil too. Works better than all of the other junk but is worse for my guts.
I am trying to cut out inflamatory foods like 'whites' (white flour, rice, sugar, fat, gluten...)and am sticking to olive oil, nut butters (no more nutella) and oatmeal. Basically I am trying the newest fad diet (no names) that is supposed to help with inflamation.
Do I really have to give up chocolate for life? I guess so.
It has been a few days...no improvement in the pain level yet.
Will push on.
Darn this is such a Bi-ch!
Sharon
skn69skn69Member
Thanks girls,
I finally managed to get in to see my GP after 2.5 months...Youppiii!
Well my thyroid is funky (no surprise) and he is redoing the tests before sending me to an endocrinologist for a consult, my joints worry him so I finally got the referrals for both the physio and the Rhumy and he is very concerned about my chronic fatigue and is having me see a cardiologist next week for a cardiac ultrasound. I am having 2 pages of bloodwork done this week and I am unsure if he has left any stone unturned.
At least I got it all done in one visit (I had to wait over 2hrs in the waiting room).
He is also concerned about my lungs (???) and wants me to have the cardiologist peek.
According to him he thinks that my auto immune is getting the best of me and that it is all downhill from here (!!!)...yikes, drats, poop!
For now I am off to have my blood sucked and my heart palpated.
At least it is progress
Sharon
Jan DollarJan DollarModerator, RN, retired
Thank goodness! Finally some tests to rule in or out various things. These sorts of things just cannot be handled with over the counter meds or herbal supplements. They can help, but diagnosis and medical management is necessary so you know what you are dealing with.

But, as typical, once you see a doctor and they get their hooks into you, you get to find out that you are falling apart all over, sigh... Roll Eyes

Hopefully, most of that stuff will be negative or easy to deal with.

Good luck!

Jan Smiler

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