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jpouch reconnected 6 weeks ago. I still have an achey pain just below where stoma was. but last weekend I spent 2 days in hospital due to inflammation just past the connection site of the stoma. They said it was pretty bad inflammation and couldn't tell why it was there, it wasn't typical. It feels so much better than when in hospital now but some still lingers. I don't know if its just pain from the connection itself still healing or if I am still having some residual inflammation? they did not give me any anti-inflammatories due to being not so far out from surgery. so could it be that its just taking longer to heal due to no help from drugs? does a pouch scope actually go up that far to the connection site where the stoma was? I want to get scoped by Shen in the next few months just to check everything out anyways.

regardless of this , my pouch is working great. only going about 5 or 6 times a day and gas is barely there now, and my hemorrhoid has almost cleared up. I just need to eat more to gain some weight now.

Last edited by Pouchomarx
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Generally, they cannot scope where the stoma stite was unless it was within 5 feet or so from the anus, and that is only if they use a colonoscope.

With your complication, it sets you back to square one for healing. The incision will heal the same, but this was a new trauma. I'd say give it a few weeks. As long as things are gradually improving, you are on the right track.

I am not sure what sort of anti inflammatories you are talking about, but you definitely do NOT want NSAIDs for gut inflammation. And if antibiotics are improving things, you do not want prednisone.

Jan

the Augmentin I'm on is 875mg twice a day, tomorrow is last dose. I just worry of course that this area of inflammation will not clear and I will be in some sort of pain for who knows how long?  Will this type of inflammation just go away on its own over time? Remzi's partner told me when I was released, if after a week or so the pain gets worse or if it keeps coming back they will have to run more tests as in scopes and biopsies to try and determine whats causing it, so that's why I asked about the pouch scope. My post op with Remzi's nurse is tomorrow so I will pick her brain on this.

Try not to get too far ahead of yourself on this. I haven't been pain free for decades, so I have difficulty gauging myself based on that. It is all a matter of degree and quality, along with other symptoms that help me determine my state of health. 

Once you are off antibiotics for a few days you'll be better equipped to assess how you are doing. As you know from past experience, GI surgery and recovery is not necessarily linear.

Jan

Had my post op appt today with Remzi's nurse. She stated everything is going well it seems, besides the little setback I had last weekend with the inflammation issue. they still are stumped what caused that. But I am off all pain meds and today was last dose of antibiotic and feeling pretty ok. I still get pains under where the ileostomy was closed but she stated that can last between 3-6 months. I am going to bathroom 5-6 times a day and hemorrhoid is a lot better. Checked for strictures and nothing found. I do get a slight pinching feeling in the anal canal when going to bathroom but she didn't seem too concerned. She told me to set up my annual scope with Shen in the next few months and he can see more and know if we have anything to be concerned about but feels I am doing great. Said I am a little thin for her liking and wants me to fatten up, which I agree. My normal weight is around 155-160 and I am about 145 right now. I am 5'8 but I have a smaller frame. Just pretty happy where I am right now, and hoping things continue to progress.

scheduled a scope with Shen on July6th since that was soonest I could get. I still have this slight pain on the right side below where ileostomy was closed, not sure again if its from the surgery itself or the setback I had a few weeks ago with the inflammation 20 cm proximal of the connection site. I emailed Shen this question and he emailed me back stating if this continues he wants to do pouchoscopy sooner. I told him this was soonest appointment I could get, so maybe he will pull strings for earlier appointment if I need. I wonder what he could be thinking or if concerned about something??? or this is just precautionary?? what could it be? what are some options ?

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