hey guys. I just had step 1 of 2 step jpouch surgery on the 19th. I’m still in the hospital but probably going home tomorrow or next day. I’m very scared to eat. The day after surgery they had me already eating a low fiber diet. It was a burger and fries. Well that was a bad idea because even tho some stool was still going into my bag, my stomach started hurting badly and I felt terrible. The placed an NG tube and sooo much came out. It was in for 24 hours. Then I spent a day back on clear liquids. Now I’m back to low fiber diet. I’m terrified to eat. I’ve had a few bites of spaghettios and some mashed potatoes but that’s it.  I scared to have another blockage. My stomach is very distended but I’m not sick feeling. I’m passing stool and some gas but feel as though there’s so much gas still inside. How quickly did u guys eat normal food after surgery? How much could u eat?

 

thank u!

Original Post

I was very cautious and stayed on a very soft/low fiber diet for a full two weeks after surgery.  Yogurt, peanut butter, saltines, farina,  protein smoothies etc.  Then I very very gradually added some foods, but honestly I never ate 'normally' with the stoma.  I did well with well cooked chicken and carrots, white rice, applesauce, soft cheese, toast and the other already mentioned mushy food.   Since it was temporary I didn't feel the need to experiment.   One time I made some chicken with peas for my husband and I accidentally ate a pea (one pea!) with my chicken.  It blocked up my stoma for a bit, but then shot out like a cannonball followed by everything else.  Whatever you eat chew 10X more than normal.

girlunky posted:

I was very cautious and stayed on a very soft/low fiber diet for a full two weeks after surgery.  Yogurt, peanut butter, saltines, farina,  protein smoothies etc.  Then I very very gradually added some foods, but honestly I never ate 'normally' with the stoma.  I did well with well cooked chicken and carrots, white rice, applesauce, soft cheese, toast and the other already mentioned mushy food.   Since it was temporary I didn't feel the need to experiment.   One time I made some chicken with peas for my husband and I accidentally ate a pea (one pea!) with my chicken.  It blocked up my stoma for a bit, but then shot out like a cannonball followed by everything else.  Whatever you eat chew 10X more than normal.

Thanks for your reply! I’ll probably do the same...just stick to a very simple basic diet. Im still in the hospital, on day 5 post op ...I feel good and want to go home but they are keeping me here because my output has been pure liquid and I’m emptying like 1500-2000 cc in 24 hours! Ugh!!!! My stool will not thicken. They don’t want me to have thickening meds yet either. Just want to see if my body will just naturally thicken it up. So annoying. I just want to go home.

I was VERY watery with the loop ileostomy and can still have very watery days with the jpouch.  Today is one of those days.  Lomotil works better for me than Imodium.  Just don't dehydrate - drink enough water, eat some salt, or a sports drink if you like them.   If I thicken too much then I can't empty the pouch, still working on the best balance...

Anyway try eating more really dry starchy foods - saltines , cheerios, cornflakes.  If you call the kitchen they will send you a basic bland meal, you don't really have to eat what is on the menu.  That may get you home sooner.  My doc said have some saltines or cheerios etc every time I eat at first. 

Very good advice, thank you! Did your ileostomy ever thicken up? They said mine should eventually but it doesn’t appear to be happening. It’s pure liquid, water consistency. I’ve read some people have liquid the entire time with the loop ileostomy. My doctor said it should get to be the consistency of porridge. Also, when you had your ileostomy- did you feel your insides underneath your stoma squeeze and tighten up hard before stool came out?

 

thanks!!!

kelsey

Hi there I also started eating soft foods and then I vomited. They put the NG tube down my stoma. Not pleasant. It resolved and they had me try again. This time I was able to tolerate food. Hang in here. Please follow the instructions of your doctor.

They gave me Metamucil to thicken it.

Are you walking? 

Andrina posted:

Hi there I also started eating soft foods and then I vomited. They put the NG tube down my stoma. Not pleasant. It resolved and they had me try again. This time I was able to tolerate food. Hang in here. Please follow the instructions of your doctor.

They gave me Metamucil to thicken it.

Are you walking? 

Oh wow, that sounds painful! Glad it resolved though! Yes I’m walking a lot. I’m doing everything they’ve told me. I barely had any pain meds...not since like 2 days post op. I’m eating the right foods. Drinking plenty of water. It’s just crazy. Tonight alone I’ve had about 1500 output- within like 5 or 6 hours. I don’t know what to think?

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