Hey everyone. I've been on this forum for ten plus years.

I haven't posted in a while since I wasn't sure what to do myself. Here's my conundrum.

 

I had a failed pouch in 2007 due to a leak I have a loop ileostomy temporarily. I thought I'd just get it until I could do the redo. However, I just never found someone in Canada to do it. I then went to school and did more degrees and went on with life. 

 

Having finished now, I need to get something done. Getting rejected from tons of women for the ostomy and being unmarried makes this a challenge. 

 

My current problems are this pouch discharge which is due to my diversion pouchitis. I am also worried about the long term damage of my pouch due to the diversion. Any advice on how to treat this?

I am thinking of getting a US opinion with Dr. Remzi at the Langone. What do you guys think?

Original Post

I think you ought to get a qualified opinion to inform your choice. Dr. Remzi is certainly qualified, and perhaps you can plan to make a trip to New York a delight instead of a burden. Broadway show? Museums? Dr. Remzi might even know of a qualified surgeon in Canada for you - perhaps someone he’s taught.

Also: a permanent ileostomy generally works much better than a loop ileoostomy, but it will look pretty much the same to other people who see it. Someone actually worth spending your life with wouldn’t give it much attention, but people like that can be hard to find.

You may want to look up Dr. Zane Cohen in Toronto for a second opinion.  I do not know to what extent he is still in practice, but he might recommend a doctor in Canada who could help you.  In the event that a pouch redo is not an option, there are two procedures that do not require an external bag: the K pouch and the BCIR.  There is a lot of information about them on the internet.  The button hole size stoma is placed lower than that for a conventional ileostomy and is covered with a small absorbent dressing.  It makes things much easier in a dating or relationship situation.  I too was scared s*#@less about dating when faced with the possibility of having an ileostomy, but fortunately now have a BCIR and fabulous wife.

Add Reply

Likes (0)
Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×