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During my surgical journey was the debate of getting a jpouch or permanent illeostomy.this played on my mind alot as two members of my extended family have the bag but I don't know anyone with a jpouch.

After going through 13 months with the bag and 2 months with the jpouch I can't understand those that never gave the jpouch a try and went straight for a permanent ileostomy.I remember one guy saying he had done his research and decided on the permanent ileostomy and barbie butt.And others agreeing with him and saying they would rather change their bag than their pants.Event though many times I had to change my bag and my pants and would rather just change my pants even though I don't have trouble holding on.



It is strange that you can decide what you think is best when specialists probably know better.and you can choose what many would say is a mistake?

Last edited by Chook
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@Kmiller posted:

I suppose for some people they just want it over and done and don't mind the bag. For me, I had to try the j pouch and am glad I did. Still some issues 10 months in, but I will get there. To go to the ostomy with no going back, definitely not for me.

I agree. I am very happy I tried the pouch as well. I would have had regrets had I never tried the pouch, I am still happy with her too

I was raised by a mom who always said that she would rather see me dead than with a bag (I have been sick since birth so it has been a long journey and I had a colostomy from age 2-3).

At 18 I opted for a K pouch which was still very experimental back in 1979 (the ancestor of the J pouch, an internal ileostomy with only a tiny stoma outside)...I never regretted it. And my mom never forgave me. Any outside manifestation of my disease was a failure to her...

I have had to fight to keep my pouch. Surgery after surgery, repair after repair...because it is important to me...but I can totally understand that some people just want to get on with their lives. And they are probably right!

Maybe if I had not been 'polluted' with my mom's opinion I would not have been so tenacious...we all have to live with what works for us and makes us happy.

I hope that the 2 of you (you and your pouch) live a very long, happy and healthy life!

Sharon

@skn69 posted:

I was raised by a mom who always said that she would rather see me dead than with a bag (I have been sick since birth so it has been a long journey and I had a colostomy from age 2-3).

At 18 I opted for a K pouch which was still very experimental back in 1979 (the ancestor of the J pouch, an internal ileostomy with only a tiny stoma outside)...I never regretted it. And my mom never forgave me. Any outside manifestation of my disease was a failure to her...

I have had to fight to keep my pouch. Surgery after surgery, repair after repair...because it is important to me...but I can totally understand that some people just want to get on with their lives. And they are probably right!

Maybe if I had not been 'polluted' with my mom's opinion I would not have been so tenacious...we all have to live with what works for us and makes us happy.

I hope that the 2 of you (you and your pouch) live a very long, happy and healthy life!

Sharon

I am 100% sorry that your mom said that to you, you did not deserve that at all. I was abused by my mother too, but we are survivors of abuse, never let abuse overcome you, be different than your mother.

Let me be the one to say, "I would rather see you alive and with a bag than dead."

Last edited by Lauren Of Emerald City

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