Weird stuff going on

Hi, I definitely passed a little bit of what you are talking about once every day but not multiple times. It kind of sounds like you have water entering from outside your body as well which should not be happening either. I am sorry I don't have any more information for you, have you spoken to your doctor because this doesn't sound right.

Good luck.

Hi Adelle

Check with your Doctor; but one thing to consider, is if your stool is watery maybe ask your doctor to prescribe some soluble fiber; if that is the cause then soluble fiber will help.       

I had chronic cuffitis and didn't have the water problem. It appears as you have several problems going on. I don't know how experienced your doctor is and don't mean to offend but maybe it is time for you to go to a j-pouch/IBD specialist.  My local GI referred me to the Mayo Clinic when my cuffitis wouldn't go away under conventional treatment. He said he was a generalist and I needed a specialist.

Do you live in the U.S.A.? I ask because there are 3 Mayo Clinics and 3 Cleveland Clinics in the U.S. There are more specialists out there but I know these 6 will all have them.  I don't recall anyone else on here passing so much water like you are.  It doesn't sound right :-( 

Thanks you for your answers and will to help..

I Iive in a small european country so we have just one pouch specialist and therefore I came here for advice. I feel he isnt sure whats going on, the pouchoscopy shows cuffitis..

I have a feeling that you havent read that I have an unconnected pouch and ileostomy, so I didnt have my takedown yet.

The water is coming from my bum/pouch that is not connected yet.. I know this is somewhat normal but it has been coming in very large ammount lately..my surgeon said it would be normal if two spoons of water came out daily.. 

Hi Adelle

So at the moment you have a opening in your abdomen which is called a stoma. You have discharge of water from there; my advice stays the same.

Rebel,

No, i have watery discharge from my j-pouch, not my stoma. Please read again my first post..

I know some discharge from jpouch is normal but i have like 2 glasses od water coming out every day..

This sounds like an issue you should be addressing with your surgeon.

My surgeon tells me that is normal, but I dont believe it is..I dont know how was your unconnected pouch and discharge with you all?

I had minimal discharge, not 2 glasses of water.  It was very little.  Dribs and drabs.  Have you told him the volume of the discharge?

Same here, minimal discharge on occasion, not what you are talking about.  

Thank you for your answers..i know this isnt right, probably inflamation im my j pouch, i will ask for more tests..

Adelle I think you've probably had a different procedure to me. I had two part surgery.

The small bowel was connected to the stoma (abdomen), that's where the stoma bag was placed for waste.

The pouch was created and connected to the anus and left to heal;

nothing at all came out at all until everything was connected.