my first post as I’m only 5 weeks post takedown with my new j-pouch. It’s been a terrible recovery so far unfortunately leaving me to question why I didn’t just stick with the ileostomy however, here we are….
So basically, I’m in constant pain and urgency at the back end. It almost always feels like I need to go to the toilet and that my ‘exit’ it very swollen however when I get to the toilet very little happens other than it feeling like it’s turned itself inside out. I’ve read a lot about pouchitis and it sounds similar but my doctor is clueless as j-pouch’s are not particularly common and my surgeon is impossible to get hold of to ask (UK-NHS 👎🏻) could it be that or is this just a normal part of recovery? I’ve heard this is supposed to be the easiest stage to recover from but this is the third for me and mentally the most difficult recovery!
any advice is helpful