Wow - it has been a LONG time since I've posted or replied here on the j-pouch site. Glad it is still in good shape!
Speaking of good shape (or not), I'm doing okay at 50 yo, with a 13 yo j-pouch. My j-pouch is humming along without much to complain about at all.
Outside of that, however, I am seeing more and more manifestation of the underlying inflammatory disease as I get older. I had posts previously trying to figure out my back and joint pain issues. Rheumy concluded it's probably a combo of mechanical (osteo) and inflammatory arthritis. Sed rate and CRP numbers always look good for me. Of course, my 16 yo daughter with her 8 yo j-pouch just started seeing my rheumy for her arthritis and her Sed rate and CRP also look fine. However, the GI docs at Children's Mercy have her give a stool sample to look at her calprotectin #s. This year she was at about 150, and the prior year she was at 600+ (normal is 10-60). So that shows she still clearly has inflammation issues.
Anyway, last year I got bronchitis turning into probable pneumonia, 3-4 months and 3 antibiotics before clearing up. Both pneumonia vaccines after clearing up and asthma issues like I haven't experienced before. Finally my allergist tried throwing everything at me: prednisone (just in case), albuterol nebulizer, two different corticosteroid inhalers, Singulair, and cutting off my sulfasalazine (little known fact that doctors have known since the 1960s: rarely, sulfasalazine can contribute to lung disease - which typically clears up after stopping it). My allergist also convinced me my asthma was aggravated by reflux (did you know that "non-acid reflux" is a thing? I didn't before him). And without the sulfasalazine my reflux is a worse problem. However... the Singulair was a life saver for me. Helped me a TON.
So - finally to my topic For months now I have had eye irritation, periodic pain like someone poking needles in my eyes, light sensitivity, periodic blurriness and vision issues, etc. Going to the eye doctor on Thursday to have my eyes assessed for uveitis. I guess scleritis is another possibility. Ugh.
Anyone have thoughts / advice re: uveitis and the visit to the eye doctor? Can't afford to have them miss a diagnosis if this is what it is.
Oh yeah - and my poor daughter seems to follow me to every doc I have now. First, to my rheumy for her arthritis. Now she seems to have some asthma symptoms (likely reflux too) so she's going to see my allergist next week. She'll get to go to my surgeon for her j-pouch annual visits in a couple years. Hope she doesn't keep following me around to these guys. Genetics...