I had all my surgeries in 2007! I am now a 66 year old male! I have chronic pouchitis ever since j pouch was hooked up! I was told the 1st 17 years I had Ulcerative colitis and after my colon removal due to wall to wall polyps, I still was sick and they said I must have Chrohns! I have been on Remicade, Stelara, Entyvio and now on Humara, which is not helping! Cipro, blew out my tendons in biceps, and shoulders. Flagyl caused my hands to freeze up , xffaxin does not work! After many years I tried cypro again and after a few days I could barely walk due to excruciating pain! Nothing has ever put me in remission and I sleep with pads and often go through 3 pads and 3 pair of underwear! My stomach is always really loud and rarely happy! I am not happy with my gastro doctor and his lack of care for my constant suffering! Help?? fisherdan54
I had my 3 surgeries in 2007 for a j pouch! I also have had like 5 hernia repairs and have mesh on 3 of four sides! Ever since the jpouch was connected I have had chronic pouchitis! I was told I had U.C. in 1996 and only med to work was Prednesone which I was on about 11 years! Now at 66 years old I have like 3 accidents a night, pain in all joints and especially tail bone and hips, Cipro had blown out tendons in back, biceps, both rotory cuffs! Stomach cramps are all day and every day! I drug my butt to work 33 years! Also dealt with bladder cancer after 5 years of U.C.! Been on pain meds most of my 24 years! I've exhausted all the new drugs Entyvio, Stelara, Remicade, Humira! Went through all the pill form in first 10 years! Been in this battle so very very long and the pain and nights of cramping and accidents just beat you up too much! I hate the thought of a stoma! I had 2 for about 6 months in between surgeries! The loop was worse than hell! My skin was always covered with blisters and with the loop, there was almost constant leakage! But on my straight cut on first stoma, if I got the skin healed and the plate set, it was not bad to live with! Help advise me! Is it worth going back???