But they won't prescribe antibiotics. They are not funny. It's been like that for a long time. They water it down until 'non treatment' becomes the history.

Last edited by rebel
Original Post

Rebel, do you have any symptoms? That’s more important than some inflammation, though ulcers are usually treated around here.

AARON posted:

They won't give you anything? Sounds like you need some IBD meds.

That's right nothing; she put in a letter 'with his history I do not think this is pouchitis and would not prescribe antibiotics today'. 

If they go through many years of 'they do not think it's pouchitis'; then of course it becomes the norm and part of my history.

But these are the same professionals that removed the bit of bowel that absorbs vitamin B12; then failed to diagnose for 3 years that I needed B12 Injections. In the 3 years I had regular follow up visits for pouch check up, but no mention at all of B12 Injections. 

Even when I visited A & E 4 times; still not diagnosed (I listed 15 symptoms I was suffering), then I wrote to the CEO of the Trust. Eventually got a letter from a Doctor telling me I need to have B12 injections for ever. I know the body stores at least some B12, but not 3 years worth.  

There is so much more. I might have to write a book.

 

Last edited by rebel
Scott F posted:

Rebel, do you have any symptoms? That’s more important than some inflammation, though ulcers are usually treated around here.

Scott

Just really tired, feel bloated and pouch won't empty completely. Feel hunger all the time.

Got prescribed Ciprofloxacin today for 2 weeks; then have to see the clinic in 5 weeks, then it might be a course of Ciproflaxon / Metronidazole; then VSL3 etc.

I might be seeing some joint up thinking. 

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