1 year on xifaxan. And now it's back. It seems like every time I'm under major stress my friend pouchitis returns. Found a bottle of augmentum. Maybe this can put it back in place. I'm running out of options. So tired of this. I'm like a walking time bomb for pouch removal.
Replies sorted oldest to newest
I'm sorry it's back. My GI mentioned during my last appointment about going on biologics again; have you tried biologic?
Unfortunately I can't take biologics anymore, I developed serum sickness and had reactions to Remicade, humira and simponi.
No cant take bios either. Had a bad reaction to remi plus I had skin cancer so I no longer am a candidate anyway. Why would your GI want you back on bios if you got serum sickness from them? What r u doing for your pouchitis?
Sorry, I should have been clearer. In our discussion he said that we could try biologicals as the next step then I reminded him that I had serum sickness (neurological stuff) a few years ago and then he said that biologicals weren't an option for me.
I've been switching things up, going from Flagyl to Cipro and adding Augmentin with the Cipro. And rotating them. Xifaxan doesn't do much for me.
My pouch is very new, a year old this month. A few months ago I had a scope and showed some ulcers, I've changed my diet to the paleo diet.
I also go to NYP Cornell.
