I recently had a pouch redo after my initial takedown 7/12/22. I had extreme pain, burning, frequency, blood and inability to empty since surgery. I got a second opinion with Dr. Holubar on 8/29/22 and was immediately sent to surgery due to my pouch being twisted 360 degrees and leaking. I am now 6 weeks post op with a temporary ileostomy planned for takedown in March 2023. Just wanted to increase awareness as my local surgeon missed this and several others at my hospital. I would have died had Dr. Holubar not identified and fixed the problem!
Happy to answer any questions. Just wanting to increase awareness and encourage others to trust yourself and advocate for yourself!
Here is a helpful article as well: https://consultqd.clevelandcli...sted-pouch-syndrome/