I have been on antibiotics for chronic pouchitis since 2014, about 6 months after takedown. For about 15 years, it was Cipro, but my new doc put me on a rotation as well as Humira. I would like to get off the antibiotics and, since I am not working at the moment, decided to try. Last time I went cold turkey. This time, I took a week to wean myself off by taking Augmentin every other day. By day 4, I was explosively gassy and stool was much less thick. Day 5 brought increased frequency - as in 5 times at night. The days, like usual, have been less frequent, but it starts up earlier than usual and is kinda constant from about 4 PM on. My cuff area has gotten sore too.
For those of you that have gone off antibiotics, is this how it goes? I am not sure I will be able to do it. On my last scope, the pouch was way less inflamed on the surface, but biopsies showed inflammation. Is the inflammation the pouchitis? Do the antibiotics control inflammation? I will ask my doc these questions next time I see her, but that is in about 2 months. Yes, I could try to get in earlier, but with the whole Covid 19 thing going on, I prefer to just stay in and avoid doctors' offices. This is not an emergency, just me trying to change things up.