Hello, I am new to the site. I am advocating and researching on behalf of my adult son with unresponsive to meds UC. Been ina "flare': since 2010. Looking for recommendations or the "stay away from" Docs in the Denver area that are highly skilled at J pouch surgery. Also wondering if those of you recommend going to Mayo or Cleveland Clinic for not just a second opinion, but possibly the procedures? With the distance, does that effect outcomes? Is it worth it. THANK YOU!!
Cleveland! No. 1.
What were Jeff's primary PSC symtoms? My son has had increasing high LFT"S with his Entyvio doses ( which hasn't made a huge diff in his UC.) Praying it's not another complication. My concern about C-Clinic is that how do you do all your follow ups --not just new surgeries, but any problems/concerns? Seems like your care could be seriously fragmented between CC and local docs. I am so sorry to hear of all your son's issues too. As a newbie I am not understanding that there is a second take down. Im starting to feel uneasy about this J pouch option as a viable solution. :-(