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My doctor is concerned that I go to the bathroom more than 10 to 15 times a day.  Evenings are really bad, no matter what I eat (or don't) for dinner.   I take Lialda and Lomotil but am allergic to Mercaptopurine (6MP).   Prednisone is out because my bones are already damaged from prior use.

What is your experience?  Is 10 - 15 stools daily common? Any suggestions?

Thanks, Toni

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Thanks for all your help.   I had my operation in 2001 and things were OK until about two years ago.  My gastroenterologist diagnosed severe pouchitis and prescribed Flagyl to which I had a terrible reaction (severe rash and itching) all over my body.  I do take Cipro but worry about depending on an antibiotic.  I also take Lomotil and Immodium.   

The only pain I have is severe irritation in my entire crotch area from all the pooping and wiping.   Even my Toto bidet toilet doesn't help.  Thank goodness for Calmoseptine.

I limit my raw fruits and veggie intake and try to eat a balanced diet that limits fiber and other diarrhea-inducing products.

I will try psyllium.

What is "SCD"?

Toni

Toni, I'm on Cipro all the time, and have been for years. It's not that I'm delighted to take it, or even particularly confident that it will be harmless. It's just clear for me that it's well worth trading off the certainty of a miserable life for the alternative of good GI health plus the risk of possible side effects. I have a great life thanks in large part to Cipro, and if it stops working acceptably at some point in the future then I'll deal with that. I refuse to be driven by fear. I hope you find a path to good health that's acceptable to you. 

Jpouch since 2010 with similar chronic issues of pouchitis, itching, irritation.  Cipro has worked for me too but seems to lose effectiveness after a while.  Trying Xifaxan now and it's not working.  Thanks for the info Scott regarding long term Cipro use. I don't eat grains, fruits, or high carb foods because of my diabetes.  Not sure if this impacts pouch at all.

After several years of very successful Cipro use it began to lose effectiveness. I decided to try adding Flagyl, even though it had never been effective alone. The combination has worked well for me for years now. I'd prefer to rotate antibiotics every few weeks, but haven't had adequate success with other choices.

A very low carb diet does seem to help some who have chronic pouchitis problems. 

Hi there. 

Not sure if my story helps abit. I had 3 bouts of pouchitis during 2012 and 2013. Both times being treated with flagyl and ciprofloxacin, my hospital struggled to get hold of vsl3 for me but at the same time I started a low carb diet. Basically I eliminated all  rice, potatoes, bread from my diet 95 % of the time. I have not had a bout of pouchitis since then. I probably go to the loo 5 to 6 times on a bad day and manage to sleep through most nights without a bowel movement. I am currently on no medication.

I know everyone is not the same, but hopefully this could help you.

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