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Hi gang,

Before I begin, I'll be discussing topics of a sexual nature, it might not be suitable for our younger readers, with that said.....I have a question for all the single people here, actually, it applies to us all directly or indirectly. When meeting someone new, do you reveal your intestinal diversion? A friends sister asked me this, as she just got her ileostomy a few months ago, and has been wanting to start dating again, but, being happily married to my hubby for 24 years, I had no answer, I think it's an important question to ask, so I put it to you. Do you think it necessary to disclose your intestinal diversions with a potential future partner? To me, its irrelevant at first, but when intimacy comes into play, I can be an issue, particularly when anal sex is part of your sexual preferences, or, if you have an ileostomy. Personally, had I'd been heterosexual, and had I not had an ileostomy, it would be a non issue as it in no way, would come into question. However, given the fact I'm gay, anal sex is an issue, and I would feel compelled to inform my date of my situation, so there's no last minute surprises.

There was a brief period, in 2008, that Freddy and I had split up, and I did try dating, but one of either 2 things would happen (I had my J pouch back then). If I told them, no matter how delicately I said it, I got dirty looks, they acted as if I had cooties, and would suddenly have plans aka I never heard from them again. OR, I didn't tell them, and intimacy came into the picture, they'd ask about my scars, I'd tell them, and they wanted nothing to do with me, it was very frustrating! Thank god Freddy and I got back together, he's been with me since my first diagnosis of UC when I was 20, throught my toxic mega colon, my colon cancer diagnosis and treatment, my temp ileostomy, my 3 step J pouch, my arthritis diagnosis and the two resulting clavicular surgeries, my K pouch and rectal removal, and now, my second ileostomy, not everyone is so lucky.

This illness and the many related surgeries, have broken up many relationships, which is just sad. If you truly love someone, how could you leave when they need you the most? It's the cowards way out, but it does let us know who truly cares about us. Had I been single now, I'm certain I'd feel it necessary to inform any potential romantic partner of my ileostomy. The way I see it, they are going to find out anyways, might as well know if it's an issue from the get go, other wise why waste your time and risk being hurt? Again, I think it's a bit more concerning for gay men. Granted, anal sex definitely isn't the end all and be all of sex, but it can be a big issue for some, and there are some women and "straight" men who enjoy anal stimulation. Many, like myself, have everything removed, including the rectum, so it can be a big issue, I'm just thankful for my hubby, it doesn't bother him in the least, granted, after 24 years of marriage (we're not counting that little hiccup), sex now consists of "turn off the lights, I can still see you!!!" Eeker .

So, I ask you, what would (or do) you do? Do you tell your dates about your health issues, or do you leave it for them to discover, hoping they can handle it? I'd like to be able to answer my friends sisters question, so please, be honest, and don't be shy, this is a serious, legitimate question that applies to us all, thanks everyone!

Cheers,
Eric Eeker
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I tell people all the time. Easier than explaining why I can't eat certain foods and I wear my balls on my chest any way :-)

If they have an issue I rather them exit the door right away. Not worth my time. I sometimes wonder if a friend of mine stopped talking to me when I left one if my tubes in the bathtub after cleaning it and he took a shower. Still a mystery.
Yeah, I tell pretty much everyone... I guess if I were trying to have a one night stand I might keep it hidden (like physically keep my top on) but otherwise the appropriate time seems to be sometime between the first date and the first time you have sex (even if that window of time is five minutes, LOL).

I guess my attitude is that you have to give people the opportunity to be accepting. If you just spring it on them without explanation or act ashamed, you're probably not going to get the reaction you want. There's a lot more to me than UC and having an ostomy so it isn't the FIRST thing I would tell someone, but I wouldn't want to hide it either.
I wear my GI history like a badge of honor, it's been part of who I am since I was 11, so EVERYONE around me knows, lol. Sometimes they say it's TMI. I've been lucky, too, to have been with my partner/hubby since I had my surgery... he was only 17-18 when we started dating (I was 19), and he never ran away, even when I had "Babs" (the bag).

I agree with the above comments. They're not worth the time if they run away, and you should talk about it before the first sexual encounter. I have a lot of gay male friends who don't always engage in anal sex, and I know that my one friend for sure would not give up on a relationship if someone had any of our issues. If they can't get past it, you wouldn't want them in your life, anyway.
Last edited by rachelraven
Ok Sweetheart,
Here goes...I have never dated as a 'normal' person, been sick since I was born and had a diverting colostomy at 2, scars everywhere and half a colon, incontinent and bowels that ran bloody water most of my teens...you have got to admit that it was not a receipe for dating success but I did still manage to go out now and again...and I waited a long time before allowing anyone to get close enough to me to for me to need explinations...but by then I knew who I was dealing with and if they were worth my time...the couple of times that I tried to be spontaneous I usually ended up with less than optimum results...I had one very cute guy kick me out of bed when he discovered my stoma...(thought that I had some sort of skin disease like lepracy! Didn't know what a stoma was.)
With hubby it was different, we were friends first, casual dates and finally more and even then it took me 3 months to fess up...most of the time I used 'tactical camoflage' to avoid discussions and explinations...I was not up to the challenge back then, Pouches were unheard of here, there was no internet and people were not as sophisticated as today...times have changed, we talk about lots of things more openly...and we are less scared to admit our warts now-a-days...
If I was single again (Dear God, I hope not!)I would still not be able to blurt it out on the first date...power to anyone who can.
As for casual friends, employers and acquaintances...the older ones know, the newer ones don't and probably never will...Why bother? People with hammer toes or excema don't go around talking about them at coctail parties so why should I put my small bowel on the table with virtual stanger?
Sharon
I've dated a lot in the past year. In my opinion the best way to do it is to not bring it up on the first date. My thought was that if I was not going to be interested in them in the first place then it's a waste of time and mental stress to bring it up. We also have to be honest with ourselves and realize that just because it's a part of our lives and we are completely used to it, it's not the same for someone who has never had exposure to ibd or these kinds of issues. It can be overwhelming for someone and we can't always blame them for that. I say let the first date be about building chemistry. That way they may have a little more vested in you when you do tell them and may be more open or willing to accept it. I feel extremely lucky that I've finally found the one. We been together for a couple months now and she is completely cool with everything. Even the current bout of cancer and chemo I'm going through right now! She is a nurse so that helps a lot. I can't remember if I told her on our second or third date. Even though it's such a huge part of our lives, I just don't think there's anything wrong with not bringing it up right away. And if you bring it up later than sooner then it seems like less of a big deal. Just a "oh by the way" kind of thing. Talk about and move on. I think they get freaked out if we dwell on it and make a big deal about it. If they see that we are cool about it and don't make it a big deal, then they may adopt the same mindset. I try and downplay it any chance I get and keep the "it is what it is" mindset.
I was single for a month, no j-pouch, no bag, but was struggling with UC alot. I dont know what but i needed to let this girl know why im rushing to the bathroom at times. to date we have now been together for 3 years 5 months, she was there with me when i had my bag and now my J-pouch (only have had it for a month) she is my rock,.

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