Replies sorted oldest to newest
Here's my two cents, for whatever it is worth, given by someone 18 months out from j-pouch surgery. I'm still learning every day about what the new normal is and may be. The new normal may be an illusion, but you are starting a journey of self-knowledge that will help you manage your body. It's a daily challenge on so many levels. On one hand, you have to read and learn to pay close attention to your body. That way you can chose what works for you best. On the other hand, I really cannot say enough in praise of this j-pouch forum. Indispensable for it's knowledge and caring from contributors. You haven't "met" her yet, but you will come to appreciate J-pouch Goddess Jan Dollar and several others. Good luck. Perseverance.
Goddess?! Thanks, but just an experienced poucher with some nursing experience just wanting to help.
John, tired? You bet! Most people underestimate the huge amount of resources it takes to recover and heal from this surgery. If you were sick before surgery, that sets you back even farther. Add to that, the lack of sleep and less than perfect nutrition, and you have fatigue with a capital F!
There is no rushing the climb back to health. No vitamin, potion, supplement, etc. that will speed things along. Of course, if you are anemic or something like that, it should be treated. Otherwise, just be kind to yourself and rest when needed.
It took me a full year to regain my stamina. I was running on half empty all that time. I pushed myself to do what was neccessary and loafed the rest of the time.
Have your iron levels checked if you haven't already.
Hockadoo did a great job in this post. Hate to say it but you are part of a special group. Welcome to the club.
Dehydration can cause tiredness, if not detected, it can easily creep up on you after a good nights sleep. An insufficient fluid intake for a hour or so before bed, then no fluids for a further 8 hours whilst sleeping and maybe an insufficient fluid intake for another couple of hours, once awoken the next day; that's 10/11 hours without fluids.
Before my takedown and due to less of my small bowel to absorb fluids; I suffered from dehydration which resulted in Kindney failure and it's such a gradual process, I didn't release what was happening, I Just felt tired and was sleeping until I had no energy what so ever.
Doctors have advised, as a guide, to remain sufficiently hydrated we should produce urine at least three or four times per day, which should be of a pale straw colour.
Since my takedown, I experience fatigue and an unusual sleep pattern, which I believe is due to dehydration, I sleep through once asleep without disturbance for at least 8 hours but I often awake the next day still feeling very tired.
Jan is right it takes a long time to get most of your energy back. Drinking water and having your iron checked is good advice. Everyone is different but you are certainly on the right sight. This sight helped me get my life back. Every ones input helps so I thank everyone here for all the advice that is given to me. Good luck Grace