Tinidazole....

Akk3769Member

So I went to go see Dr.Shen about a month ago and he put me on Xifaxan which didn't work.

I wasn't really impressed because he spent literally 10 minutes with me, ordered blood work, and then sent me home. I drove 6 hours to go see him!! and then 6 hours back.

Anyways the Xifaxan only made my pouchitis worse just like flagyl did. Well I was reading online that they have great results using Tinidazole with combined with Cipro....downside is that I can't use Cipro because I am allergic to it. Ugh! I'm just so desperate to have the inflammation go away.

Also, I've noticed that since I had my surgery it hurts my lower back really badly if I am standing too long. Does anyone else have this problem?

3/12/1310:16 PM

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TE MarieMember

Can you call him or email him back telling him it didn't work and ask if he can write/call in a prescription for you for the antibiotic you read about?

3/12/1311:46 PM

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Akk3769Member

He did write me a script for Tinidazole but i'm worried that it won't be as effective since it is usually paired with Cipro and I can't take Cipro.

I'm kind of sick of using antibiotic after antibiotic.

3/13/1310:12 AM

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TE MarieMember

I hope it works. I have a hard time standing very long too. When my abdomen hurts my lower back does too plus the rheumy says I have arthritis there too. It hurts when my abdomen hurts so I think they are related.

I'm sick of using suppositories every night and planning my whole life around my pouch.

3/13/1312:10 PM

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n/aMember

Akk, Shen gave me tinidazole too - it worked well in my case, with few/no side effects until I'd been on it about 8 months. You may want to try it for a week, 10 days, and see how it works for you. I was not on it with cipro or any other antibiotic.

3/13/131:49 PM

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liz11Member

Dr. shen switched me from rifaxim to tindamax. Tindamax worked like a champ with hardly any side effects at all for me. I definitely was using it solo - not in conjunction with any other antibiotics.
Don't see why you wouldn't try it.

3/13/132:08 PM

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PouchomarxMember

SO you guys used Tindamax alone just for the pouchitis? he has prescribed me this before mostly for my sinus issue but i went off of it due to past cdiff issue. it was my choice to go off but think i may be having a bad cuff flare or pouchitis so may try it again. the cdiff issues scare me though as far as any antibiotics go. Flagyl does not agree with me, and Cipro has issues we all know of.

3/13/133:59 PM

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n/aMember

Yes, tindamax was for pouchitis (and coincidentally, to help keep the fistula drier). No other antibx. concurrently, but used canasa at the same time.

I liked the tindamax - no side effects, until I was on a little to long and then got those darn tinglies.

Isn't flagyl (and tindamax) used to actually treat c. diff?

3/13/134:36 PM

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liz11Member

poucho- my new infectious disease doc at CC told me that Tindamax provides coverage for cdiff. He wants me back on it to help with my unhealed wound and I specifically asked him about my cdiff history. He basically described it as "preventing" cdiff.

3/13/134:55 PM

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Akk3769Member

I've taken about 4 doses of the Tinidazole and I haven't noticed any side effects. The number of bms are slightly lower and I haven't had too much abdomen cramping. I'm still having straining but hopefully that will go away.

I've had cdiff 2 times before so that always scares me with antibiotics but he said that cdiff isn't a worry with this antibiotic. I just hope i can get into remission!

3/13/137:40 PM

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TE MarieMember

It's good to know about another antibiotic that is ok to take when we are prone to get c-diff!

FYI fellow c-diff folks
I've been taking s. boulardi along with VSL#3DS since my last round of c-diff. It is supposed to help prevent getting it. It's a prebiotioc (?). I ordered it from Amazon.com for $14 and refrigerated it after I opened it. There were several brands and they probably are available where vitamins are sold.

3/14/135:10 AM

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clouseauMember

I went to see Dr Shen last week after he had me on cipro and tintazole for a month, no side effects but it did help reduce the number of bowel movements substancially. After finding out I had a very serious bacteria called Pseudomonas aeruginosa he changed the tintazole to bactrim another antibiotic.

3/18/138:42 PM

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