The screaming has stopped.....

…….now there is just whimpering. Thanks for all your support.

kjeane, I will follow up with the GI you recommended, but I will have to talk myself into it first. My history with GI’s has been traumatic: #1 misdiagnosed me with a bleeding hemorrhoid: #2 refused to treat me, and referred me to a psychiatrist, when I refused to take more prednisone: #3 was actually OK, but decided to join the practice of #2; #4 failed to diagnose a blockage that damn near killed me: #5 refused to treat me after I insisted she explain my recurring symptoms: #6, well you may have heard, that GI thinks I have colitis!

Jan your defense of medical professionals is an understandable bias. I am a professional and currently working in a FQHC. The docs are so overworked it’s amazing there are not more errors. But the docs that have me screaming can’t hide behind ignorance or fatigue. I am enraged because there is no plausible excuse. There is, unfortunately, just a lot of bad medicine out there.

Fortunately, this forum allows us to be our own best advocates.

6/8/1210:57 PM

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jeaneMember

Grieving,

I understand your apprehension. I was repeatedly told I had low grade dysplasia in my colon (with second opinions indicating it was indefinite). I didn't care how much I read about how difficult it can be to distinguish LGD from inflammation, I was REALLY pissed off when my colectomy came back clean with no dyplasia and I was left dealing with the outcome.

I swore no one but my surgeon would ever touch or scope my pouch. Well after a year and almost 30000 OOP in numerous medical expenses (my surgeon does not take insurance), I knew I had to find an extremely competent surgeon or GI who accepted insurance to follow me. In addition, trucking to NY for the various issues I have had since surgery was really becoming an issue.

I would not refer you to the GI I did if I did not feel 100% confident in his abilities. You owe it to yourself to find a competent medical GI who can treat you and understands jpouches and this GI does. Good luck.

6/9/1212:30 AM

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