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Anyone who has read my posts over the last years knows that my hubby has been alternatively supportive, stubborn, terrified, reclusive and even on occasion aggresive towards my illness, pouch surgeries and complications...so Friday he came home and told me that while talking with a colleague who had met me last week that I was 'his rock, his pitbull, his mountain on whom he counts more than anyone else...that I was amazing and surprising in that I faced up to illness and disease with a smile and never, ever let go of my dreams...and that he was so proud to be my husband'...and then he appologised to me for ever doubting me or my capacity to fight for what I believed was true...that I would one day be healthy and be able to have a normal life...
It has been a long and terrifying journey these last 13 years...over 15 major surgeries, some successful others disasterous and as many occlusions, torsions, blockages and hernias plus all of the other post op complications that go along with them...the last 3 years of full out convalescence where I could not even dream of working plus the loss of my appartment and all of my savings...some days I did not honestly believe that I would be able to put one foot in front of the other ever again...but he stuck it out with me inspite of the advice from many of his 'friends' that he could find 'better' elsewhere. (no longer his friends...I made sure of it!)
It was harder for him than for most because his job requires me to be present for many events that demand a healthy spouse...Hour long visits to construsion sites (where is the toilet???!) and inagurations of new unfinished buildings (stadiums, amphitheaters, urban renewal projects...) where we had to walk around for miles without a break...weekends spent with couples in foreign countries where I couldn't eat a thing and was terrified to leak in front of some official personality...plus all of those events that he was invited to that he cancelled at the last minute because I just wasn't up to it ( terror of public leaks or too much pain to move)...and refused to go alone...
It has been a long and bumpy ride for him...I got sick after our first date, we had our 2nd and 3rd in the hospital!...And he had no reason to stick around other than the fact that he loved me...many would not have hung around let alone married me between 2 major surgeries...he fought against family and friends who told him to end it a thousand times, that I was too 'complicated', too much trouble, too sick to give him a good life...and a couple of times we almost didn't make it...so when he told me that he was a weakling and coward and I was the one who gave him the courage to go on I was shocked...My Chistmas present this year was him telling me that he loved me and was lucky to have me as a wife...so for those of you who think that it is over, that an unsupportive spouse is the end or that it can never be good again...give it some time and nurture it...maybe, just maybe it will work out in the end.
I am so grateful that I didn't give up on him.
PS...I found a job last week too.
Sharon
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I'm so happy for you, Sharon. I believe true love is the most important part of life & as long as one has someone to love & to return that love, that one can survive anything awful life might throw at us. I've been extremely lucky in that I had a loving, supportive husband of 37 years who stuck with me through my medical ups & downs, and now, after he passed away 4 years ago, I've been most fortunate to have found someone else to share the rest of my life with. May you have a happy, loving & healthy year ahead of you. Best wishes - Dixie
Sonja,
When I was sick and first had my k pouch done I was terrified to let a man see me, terrified of getting close enough to go there and basically pretended that that part of my life was over...easier than having to deal with the potential humiliation of rejection. Or maybe it was the fear of being accepted. All I know is that I wasted so many precious years worrying about stupid stuff...my hubby came into my life a first time when I was 28...he was 42 and freshly divorced. He tried and tried for a whole summer and other than some chaste kisses I wouldn't let him into my heart or anywhere near my body...we stayed friends and 10yrs later when I was maybe a bit 'readier' he came back to me. Too bad that I wasted those 10 healthy years on fear. We could have had a different life with years without surgeries and hospitals...instead I allowed my fear of revealing scars, stomas, sickness etc to steal my good years...I was lucky that he came back to me but I do regret the waste...the years that I will never get back.
If I have a Christmas wish for all of you it is to cease the day and not let this disease take more away from you than it already has.
Sharon
It is always a daily battle to keep a marriage fresh and balaced...just because we are the 'sickies' doesn't mean that they do not need us and our attention too...they can become jealous of our disease and illness...sounds silly but true...they get jealous of all of the attention on us and on our bodies that become off limits to them on top of everything else...we are so busy being ill, pre and post op and dealing with our ouwn sh-t that we forget that they need support too...and we need to keep the gremlins away from them...those nay-sayers who tell them how much better off they would be without us...they are conflicted, needing comfort and reassurance that we will get better, that life will one day go back to normal, that the simple stuff will one day be simple again (a walk in the park, a bar-b-que, pushing the kids on the swings...)and we are not around to reassure them...we are suddenly the needy ones...it is very scary for them and when it isn't just a 'short and easy' illness like appenicitis or a broken leg then they really panic...
My hubby admited that he had missed 'me' while I was 'gone'...the fact that over half of my surgeries took place in Canada made things even worse...I was 5000 kms away, being cut up and open and his not being around was both a blessing and a curse for both of us...he was dealing with both the guilt of not being there and the responsibility of having to carry all of the bills on his head...and I was relieved to not have him see me weak and ill but suffered from him not being around...it is all very complicated for us and them...
I never, ever thought that we would survive it toghether...even less so with laughter and smiles...and I certainly never believed that he would ever desire me again...seeing me constantly hooked up to a bag, leaking, bleeding, swollen, stitiched and split open like a pig...it was not the sexy start to a marriage that I had hoped for...
He needed to heal as much as I did and I was too self absorbed to see it at the time..now...Well we are trying hard...
I am not saying that the challenges are over nor that it is a smooth ride forward (going back to work 'downtown' 1.5hrs away on public transport terrifies me) but it is a positive move...It will give me back some financial freedom and a sense of who I am other than chief cook and bottle washer...it will also allow him to finally retire if he wants to (he is 65+ and should have retired 3yrs ago)...that takes another stress off of the couple...his being obliged to work past retirement due to my health...
He took me shopping for my 'real Christmas Present' yesterday...stopped in front of every jewelery store window he could find...(he never gave me an engagement ring...)I could see that he wanted to offer me one...instead I chose an oven thermometer (!)...and a new washing machine...I prefer to save the money for a rainy day.
I guess what all of this Rant/Rave is about is to give all of those who think that their couples are over a bit of hope and the chance to take a deep breath and reboot...it takes a lot of time to get past it...but it is worth the effort.
Sharon
I am so glad you are feeling well enough to go back to work full time! Your husband is doing well, as most men find it hard to express their feelings.

I am so happy as it sounds like 2013 is going to be so much better for you both. I pray the last surgeries have finally solved your problems. Congratulations on your new position!

P.S I think he a new washer was an excellent choice. It will save you time.
TE,
For my 40th I asked for a new oven, for my 48th a coffee table...I seem to be lacking in imagination or romance or frivolity...I am just pragmatic probably...and hate waste so I figured even if it is harder to wear on my finger it will save me a whole lot of trouble otherwise (for Valentine's day I want a new microwave!)...for my 45th and 47th he paid for 1/2 of my surgeries...They were worth about 15 carats ! A functional stoma is so much better than a diamond.
Sharon

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