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I am home from my second take down, I had my original pouch done August of 2013, take down Feb 2014 and my pouch decided to twist and turn on me so created a bowel obstruction and the Pouch had to be redone. Dr. Wexner and his team at Cleveland did a second pouch Sep 2015 on Tuesday - a week ago I had my second take down, I am home with only 8 BM's and sleeping through the night which is a whole new concept for me. Now, the questions are: I have little to no appetite and feel sick when I eat, how do I address this? I have pain like cramps pretty much all the time even taking pain meds prescribed by doctor, how long should this pains last?  I don't know if my pouch is really empty when I go to the bathroom and seems not to be, is that normal?

You would think this being my second pouch I would not need to ask this questions since I already have gone through this, well I don't remember having these issues before, all I remember is the horrible butt burn which this time  I have taken care of that properly since day one and I am happy to report is very manageable if you start immediately.  Please share and advice any way you can. 

Thanks Patricia

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Patricia, congratulations on getting a new, well-constructed pouch! It's still very early in the process, so things will change a great deal over the next few weeks. One possible source of trouble is the pain meds themselves. I don't know how much you need them at this point, but the effect they have on the gut isn't always pleasant, though it will generally keep the number of BMs down. In any case, try to be patient as you find out what works best for you.

I cannot answer your question. 

But the appetite thing happened to me. 

I completely lost my appetite and thinking of food made me nauseous. 

Never... In my life have I ever felt that.  Never.  

I don't have my pouch anymore... Never worked right so I had it removed but the whole time I had it my appetite never fully came back.  And neither did my weight.  

Is it a side effect to getting the pouch?  How many people lose their appetite after getting the pouch?  It was so weird.  I knew I looked terrible with the weight loss but no matter how hard I tried... My appetite was not there.  Period. 

Side note. 

Once I had it removed and had my ileo created it came back with a vengeance!  Thank goodness.  I am hungry all the time and will eat anything!  And I don't look back and regret anything.  I am happy.  Getting healthy. 

But I am stumped at the appetite thing.  I know it's just a quick question in your post.  But that cannot be ignored.  I lost 50 pounds because of it.  I am skinny to begin with and at 128 pounds I frankly looked like death was at my door. 

It only been a short  time for you and as you know patience.  

Good luck and I hope with time everything works out for you.  It's all so complicated and different for everyone.  No two Pouches are the same. 

Richard. 

Last edited by Mysticobra

Thanks Scott and Richard, yes I forget Patience....... ohhh so difficult after being sick for three plus years, Thanks for reminding me that no two pouches are the same and I can not expect the same results.  I am slowly working with soups and hope to get an appetite sometime.  Yes, Scott I will ease off the pain meds since I know they have more side effect than benefits at times.  

Thanks for helping me and responding.  I needed it. 

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