This is my first time posting on a forum like this jut had a few questions and wanting to here others experience with a J-bag.
I am 21 was diagnosed with UC a year and half ago. I have been in the hospital twice with flare-ups currently I am receiving Ramicade 10mg/kg every 4 weeks, Imuran and my 4th round of steroids. my doctor has been talking about surgery because I have been burning through treatment options. I read many things about the J-Bags I was wondering if it is actually better having it. Right now I have 10 plus bowel movements a day, but only about half have blood. I am also uncomfortable most of the day and night and have many episodes of pain though out the day, especially when I eat. I can't gain weight I am actually still losing weight.
I heard with the J-Bag you still have frequent urgent bowel movements, does it get better or is it basically like being in a flare-up without the pain? I am also trying to finish school I am in my 4th year of nursing and have had to delay my final placement twice because of active flare-ups.
Also with the J-bag, this may seem odd or a dumb question, but how is drinking alcohol with it? I am 21 and I still enjoy going out with my friend to the bar and such and I was wondering if this is going to never let me drink again
Also is there any nurses out there that have had this procedure? I have had placements in the ER and I love working in the environment, but it is stressful and probably was a contributing factor triggering a flare-up. How did you guys get over it or did the J-Bag help in these situations?
Just wanted to get peoples opinions and experiences I am talking to my doctor about surgery tomorrow