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I think that the experience of the surgeon can make a big difference in the outcome of the j-pouch surgery.  I think I may have had fewer problems if I had been able to go to Cleveland Clinic or another hospital that specializes in this type of surgery.  However, despite these problems, I am glad I have a j-pouch instead of an ileo. According to your bio, you have had your ileo for quite some time. Why was the take-down delayed? 

I had my first ileostomy in 2000 then 6 months later had the Barnett procedure.  After 3 revisions I had to convert back to an ileostomy.  I was pregnant at my last surgery.  After 5 surgeries and 2 kids, I have not been eager to undergo a major operation again.  I am considering it now because my kids are older, my bag leaks all the time, my skin is in pain and I am tired of having a bag.  I am still not sure it is worth it to convert.  If someone could just give me a crystal ball and tell me the surgery would work out great then I would sign up tomorrow but I am concerned about all the complications and having to live my life looking for bathrooms again

 

In order to have a j pouch, it is necessary to have a functional anal sphincter, which is usually removed when a BCIR is performed. Without a sphincter, your options are limited to a kock pouch or another BCIR.  You definitely should get a top rated surgeon for either of these procedures, but keep in mind that there are no guarantees regarding possible complications.  After I was advised by my GI and a well-rated surgeon at Mayo to have my j pouch removed (for presence of high grade dysplasia), I was turned down for a continent ileostomy by three surgeons, but fortunately was accepted by Dr. Ernest Rehnke in Florida for a BCIR.  The surgery went very well and I have a very good quality of life.  I have always been personally against having an ileostomy for the various issues involved.  Incidentally, what complications prevented your BCIR from being successful?

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