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Background: I have a disconnected j-pouch and a perm stoma; Crohn's diagnosis due to multiple fistulas.

At the beginning of September I had either a very bad cold or a mild form of the 'flu. Since then I have had continuous anal discharge: cloudy mucus and clear to cloudy liquid. No faeces except a couple of times (and then after eating things that typically make my output looser). At first it was only a couple of times a day and mostly mucus, but now it is A LOT of liquid (up to a cup each time) along with the mucus. I'm having trouble 'holding it' and this is causing problems.

Just in the past two weeks, when I change my bag in the morning, I have a small amount of mucus and clear liquid spurting out -- never had that (that I've seen) before.

I'm waiting for a referral to see a GI, should come through today or tomorrow; this is the fastest way for me to get in to see my surgeon. I've learned how to work the system over the years!

In the meantime: I know some mucus drainage can be normal, but I've NEVER had it at all and am suspicious with the timing -- it beginning when I was sick.  Some thoughts? Possible pouchitis or other infection? Time for pouch to come out (please God, no)? Weird Crohn's symptom?

Thanks,

Gin

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Yeah, I had that question too. But apparently it is a loop ileo, for some very technical reason I don't understand. (I think because I don't have much left to work with, but I could be wrong about that.) So some leakage can happen with very loose output; however, this is waaaaaay more than normal and, as I said, doesn't generally contain faeces.

Other symptoms: general discomfort in the abdominal region from time-to-time, but nothing more than normal. I'm tired -- make that exhausted -- all the time, but I also have a very stressful living & work situation (special needs child, in house parent with dementia, tough job) so I have been putting the tiredness down to that. Could be physical, however. Really nothing else!

Oh, I do have random body parts which go tingly or 'fall asleep' sometimes, and that has been getting more frequent. Don't know if that is connected somehow -- I've always been told it is nerve damage from the Flagyl I took years ago.

Doc just phoned and thinks I should skip straight to the surgeon, so now I've got to try and wrestle that appointment.

Always a fun time.

Gin

Update: the stoma nurse wants me to try irrigation while I wait to see the Crohn's people who work with my surgeon. I have to call to follow up on that appointment today. Bit nervous about the irrigation, especially after reading all the warnings in the instructions!

As to meds, only loperamide; I take 8 20 mg capsules a day. So I presume the specialist might want to review that as well.

Hopefully will be seen soon!

Gin

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