I have been suffering since May 20th when I had my reconstruction surgery, which had its complications since my scar tissue stuck to my small intestine. This surgery took over 8 hours, it was scary for my mom and partner who literally were told 4-5, and 6 if something goes wrong. So, you can imagine the look on my face when I check into a 5:30am surgery and get to my hospital room at 9pm. I felt horrible and the worst thing was the staff trying to get me to walk the next day, which did not happen, because I was dying of pain.
My hospital stay was 7 days, took longer than usual to get my stomach started, and one day out of no where I started projectile vomiting. I had to get the tube down my nose into my stomach for drainage. I was familiar to this, as I had to do it twice before after my first surgery not a pleasant experience. That first surgery was another story, but I recovered and do not want to rehash.
Long story short, I came home and all was okay, still on pain meds and trying to start eating regularly. Then I started getting a bad pain and burning sensation from my stoma. This stoma was very different from my first and not only did my skin get irritated to the point of drawing blood, but the leaks I would have were constant and mostly at night when I slept making a mess everywhere. I have been living a complete hell since then, went back to the hospital for five days they put a picc line inside of me to feed me and stop my bowls. It was a scary time, but it some what did the trick of healing me although it’s was not 100 percent.
I would email the doctor daily, go see the stoma nurses three times a week and leave crying from the pain of the cleaning and treating they offered. I am in no way healed though better now trying to taper down from Vicodin, and eating broths and ensure. Unfortunately, there are still a few burning episodes when I eat and discharge, on the left and right sides of my stoma skin sight. The discharge literally comes out of my skin, so that bottom side has no time to heal with all the moisture down there. This has been hell, I was unable to return to work, just sit on my couch praying for the bag not to leak, not active and can’t even work remotely as the pain is to much to try and focus on anything else. Has anyone also had these types complications, cannot wait to have the stoma gone July 1st, it has caused so much pain and suffering for me mentally and physically, please help with suggestions.