I've been disabled for 17 years due to all this entyvio even with the side effects has given me the closest resemblance of a normal life My bathroom trips which were 15 a day or more now IDK I hardly go, lol I can sleep thru the night I do not have what I call the UC sickness I can eat anything I don't feel sick I feel normal except for a few days where I'll feel tired achy headaches I don't even think about my pouch health anymore I have not gotten sick in 2 years and I'm around a germy grandbaby for the last year I have gone on a cruise to Mexico ����♀️I was sweating that one but was fine and did things I never thought I could do I was complaining to my daughter the other day how I was not feeling good from the Entyvio and she said would you rather have a few days than be in bed like every day Ok I am retired but I spend a lot of time with my grand baby we go to parks and walks and play IDK whatever else u do with a one year old, I work out with weights, I'm seeing my friends more, I spent a weekend with my friends in the Hamptons, been going into the NYC a lot making up for lost time The Entyvio got me thru 2 carpal tunnel surgeries and extensive oral surgeries and next week cataracts This kind of stress would have put me in a flare It's doing its job The side effects should get better after a while otherwise talk with your Dr about pre meds. it worked after the first infusion for me and was able to reverse after the second I have not even had a scope in 2 years a miracle in itself lol good luck you can message me anytime
Oh and to Subzero try adding 3000 mg of turmeric pills every day it works great fir inflammation do not do more than that I work with a functional Medicine dr I take about 1500 I'm suppose to take more but I forget my evening dose lol
Dont know if anyone has any symptoms that im about to explain but if you have i would sure love to know. Im not even thinking its a side affect from Entyvio? Anyway i am now experiecing slight tummy ache, but is like on fire down there,and feel like i constanly have to go. Its quite uncomfortable, anyone have an idea what it is? Thanks so much plan on calling Dr. Shens office first thing in the morning but if anyone out there a has any idea what it is i would sure love to know??? Thanks again Leslie
Thank you for sharing your story��
Yes I get that sometimes as well for a day or too
What is it? Also having incontinents, real gassy, and butt is on fire!
Yeah lots of gas, either your body is adjusting, not working yet, or side effects. Gas is very common so it seems. Take pepto bismuth
check out entyvio warriors group on Facebook
Well today i have to say that i havent felt this good in years!!!! Entivyio must have taken a while to kick in for me. My 2nd treatment is this Monday i cant imagine feeling any better than i do right now. But if i do feel even better, all i have to say is wow!!! I cant believe how good i feel at the moment! Hoping it stays!! My thought is why did they wait so long to give it to me? I havent felt this good in at least 4yrs, when i first had the jpouch surgery. Im thankful for today the you God!
Recently i had to quit the Entyvio , my doctor GI mind you sent me to a nuerologist. After all the testing they dicovered brain atrophy. I was like what me?? Well they they discovered that the Entyvio can cause you to have this infection of the brain called PML that's for sure what I had. I was confused a lot, dizzy all the time, loss of balance. I was tested for PML and it was negative, thank God! after all the testing its being malnurished and not absorbing things the right way. which they have been working a lot . But I just want to inform others if taking Etyvio You can develop PML its happened to people using Entyvio. so Beware!!!!
There has never been a reported case and this drug has been in trials and approved for over 10 years now. I hope your feeling better.