after waiting for insurance approval I started treatment today in a hospital unit. I was given 1 mg of Xanax and since I am severely claustrophobic I thought this would help. I have never taken Xanax before and it just made me sleepy . That wasn't a bad thing. There was a TV angled on top so I could watch while I lay there. There was a tech right outside watching me the whole time. I was in there for about two hours total. They lower the pressure at first very slowly and then raise you up to normal pressure slowly as well. The tube is rigid glass and you are on a Guerney with a pillow. No makeup hairspray Chapstick deodorant jewelry can be worn as they explained that any chemical could potentiall burn the skin. I got soft cotton scrubs no underwear and that's all. Dr Shen ordered 30 treatments which take place daily Monday through Friday. For me and my job this means I have to take FMLA. The treatment itself just felt like being on a plane during landing and take off. No discomfort at all just minor pressure in ears. After living with pouchitis for so long it seems silly to complain about something so minor.
For my non healing ulcers associated with chronic pouchitis and what appears to be decreased blood flow (ischemia) along the original suture line we are hoping this brings relief. I am happy to share the details of this process should it help others. I was scared not knowing exactly what to expect as people seem to either sugar coat things or over dramatize! I work in health care myself so I am aware of how that can sound to a patient. Everyone is different I know and every hospital is different but I am grateful not only to have this safe forum as a patient but also the support. Thank you