Finally I found a forum with people who have same problems.
So,my name is Kristina. Came from Europe 2 y.a. I have S-pouch. Removed ALL large intestine.
Here is my sad storry:
Ive had UC since I was 16. Then all my large intestine was in ulcers..they removed all large intestine up to sphincter and made a stoma.
2nd surgery: S-pouch.
3rd surgery: they put my stoma inside my belly, now I have a lot of scarms.
I have diversion every day( so I have to use regular pads) and every night I use night big pads and I also put a lot of cotton rolls up on my pad. My alarm always setup at 2:30am and 5am, so I can go to the bathroom and there is less chance of diversion.I sleep bad, but I used to it. Btw, my S-pouch has been bleeding for a year... it’s not a lot of blood, but still....every other day I notice blood on my toilet paper...
If there some treatments for sphincter, to make it work better?
and another question, if there any government help for people who have this kind of problem? If yes, from what should I start?
My husband work full time, he is healthy , I work part time, but its soooo hard.. I work in the office near the bathroom...at least I can pay for my pads lol....