Hi! My son had surgery in May 2020. He has been having painful spasms since the surgery. He is taking 40mm of Bentyl. He also says that the spasms get worst if he takes Metamucil, Imodium, or any other med to thicken the stool.
Does anyone have the same problem? How long does the spasm last?
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I do not think I had spasms around that time, but I heard your son's situation from another person in the past. She was put on anxiety medication and it fixed up everything. I am not sure if that will fix everything for your son or not but it could be an option.
Thanks for the suggestion. He is already on anxiety medication, buspirone. He really has not been able to sleep more than 3 hours at a time. If he takes anything to help him stop or thickening the stool the spasms get even worse.
I am hoping it goes away. Not sure what else to do. I ordered some VSL#3 which is a probiotic for people with pouches to see if it helps. Thanks for your response
@Anais posted:Thanks for the suggestion. He is already on anxiety medication, buspirone. He really has not been able to sleep more than 3 hours at a time. If he takes anything to help him stop or thickening the stool the spasms get even worse.
I am hoping it goes away. Not sure what else to do. I ordered some VSL#3 which is a probiotic for people with pouches to see if it helps. Thanks for your response
Oh I see you are ahead of the game! That is good!! I am sorry to hear about your son, I hope everything works out for him. I think the VSL#3 will work for him; a lot of people on this forum are on it and it seems to do wonders for them, I think that will help! If not, might want to ask a gastro/ colon surgeon for help.
And you are so welcome! Anytime 
Let me know how everything goes for your son
I do recall having bowel spasms after surgery. As I recall, they lasted for a few months. Sometimes they actually made me gasp. They felt sort of like gas pains. They came in waves & weren't constant. I didn't take anything and they went away. I wish relief for your son soon.
Thanks for the response. I guess we will wait and hope the spasm goes away. He is under his doc care still, surgeon. He still has over 15BM a day. One day at a time.
@Anais posted:Thanks for the response. I guess we will wait and hope the spasm goes away. He is under his doc care still, surgeon. He still has over 15BM a day. One day at a time.
I am not sure if the BMS will get better or not. I am 6 years in with my J-pouch and I go 13-20bms per day. 9% of the J-pouch community goes over 13 so he might end up being a 9 percenter like me.
When he goes to school, you might want to set him up in the program to get extra time for tests and to have extra bathroom breaks. There is a program that will help him each step of the way, I believe its called ESE? IThe program is better than relying on teachers to help; some teachers are not super understanding and the ESE program is a set thing.
Thanks very much for the info. I am not sure if they have ESE at the University of Gainsville but will check it out. These are trying times for him and me . I just hope that he can live a happy and good life.
@Anais posted:Thanks very much for the info. I am not sure if they have ESE at the University of Gainsville but will check it out. These are trying times for him and me
You are welcome So far I have heard of a special program being in every school. ESE is mainly what they call it before college, I thought your son was younger lol. In college I think its called special/disability program. There was a J-poucher on here and he was in that program: he had extra time for tests, the tests was paused if he had to go to the bathroom, he could go home if he needed too, etc. Its definitely a good program! You just have to bring documentation for the school and get set up for it at the office. Your in Gainesville? Cool, I am near Tampa.
Let me know how everything goes too! Keep my updated Is he doing better?
