I had a scope done (Monday) and everything looks "perfect", pouch is fine. So I tried to introduce a tiny bit of food, soft mushy food, and I'm still not having regular BMs. I'm bloated, only passing liquid, I feel like I have a burp stuck somewhere between my stomach and throat, and there's discomfort / pain / pressure just below my ribs. So, something else entirely?? I'm miserable and about to have a meltdown. I've tried GasX, Zantac and Pepto - nothing helps.
Hi, I'm new here. I guess I'll start with a little history and then go into what's wrong.
I have FAP and was somewhat diagnosed at 2, parental neglect to get screened at a proper age, at 16 I had my first colonoscopy and a month later my colon came out. 3 months to the day after that I had my reversal. I was young and naive, I never did my homework on FAP or j-pouch. I had the information that was given to me back then. Now, just over 15 years later (and in a different province to where I had my surgeries), I feel lost. Something isn't right and I don't know what it is. I've gone 15 years with no problems, very limited trigger foods - not to brag here, but I think I've had it pretty good from some of the stories I've read.
I feel like I can't empty my pouch all the way when I go to the bathroom. I recently had a CT scan for issues with my ovaries, and they told me that my pouch looks fine, says there's no sign of pouchitis. I've been a couple weeks of tying my best to avoid the more solid foods, doesn't seem to be helping. My GP suggested lactulose twice a day for a couple of days, all it did was change consistancy. Feeling very bloated and now the butt burn is starting. I'm.so.hungry. There's this almost constant urge to go.
I'm waiting on my routine scopes - I have polyps in my esophagus, so I get two for one scopes, yay me. But there has been a mix up with switching specialist (that I wasn't aware of). I try to find the good, try to stay positive, but I'm slowing going from "this will / has to pass soon" to "what if something is wrong?!"
I'm sorry if I rambled on, I'm finding it hard to get my words out. If you have any suggestions I would love to hear them. Also sorry if this is the wrong place.