Long time lurker, first time poster. I suffered from UC and had the j-pouch surgery at the Cleveland Clinic in 2008. Since then, my pouch has been pretty normal. I could generally eat what I wanted and dealt with the occasional bout of pouchitis every few years, which antibiotics always cleared up.
Around 3-4 months ago I got pouchitis and like usual took cipro and flagyl for 2 weeks, which cleared things up. Unfortunately, I have been unable to stay off of the antibiotics this time. I will get off of them for 2-3 weeks, start feeling lousy again, and my doc will put me right back on them.
The weird thing is that my symptoms are not the same as when I had pouchitis in the past. I have had no increase in frequency or nausea, the two tell-tale signs. Instead, I get a pain/ache in my pouch that comes and goes, along with chills and fatigue. I also notice that my stool smells like ammonia or something, but other than that it does not appear any different.
I am starting to think this could be something else besides pouchitis, or maybe a different kind. I take Align and have ordered some VSL#3 to try. I am also giving my GI doc some stool samples tomorrow to rule out things like C. diff.
I should mention, I just took the bar exam two weeks ago so I have been under a tremendous amount of stress. After I finished it, I definitely felt better, but nonetheless it has been 3 weeks since I got off the antibiotics and I feel these new symptoms creeping back.
It's just frustrating because I keep getting off of the antibiotics and over the next few weeks I slowly feel my symptoms creeping up again. Has anyone ever experienced this type of intermittent pain/fatigue/chills but with no increased frequency or nausea? Any other suggestions on what this could be or how to tackle this?